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Sunday, March 15, 2020

IBD & COVID-19

We received emails from doctors to share with our members:

Here are the guidelines to share with everyone 
  • Stay on your IBD medications: If you are feeling well, we are recommending to all patients with inflammatory bowel disease (IBD) to continue your medications, as the risk of a flare of your disease likely outweighs the risk of contracting COVID-19, Inflammation due to IBD can lead to complications and damage to your intestinal tract. Also, active inflammation associated with your disease is a significant risk factor for getting any infection. This includes immunosuppression such as immunomodulators (azathioprine, 6-mercaptopurine, methotrexate), JAK inhibitors (tofacitinib) and biologic drugs.
  • If you are taking a mesalamine: (Asacol, Apriso, Canasa, Delzicol, Lialda, Pentasa, Rowasa) or other aminosalicylates, these are all safe and are not immune suppressant medications at all.
  • Immunomodulators: Patients with IBD who are on immunosuppressive agents, like thiopurines (azathioprine, Imuran, 6-mercaptopurine, [Knows as 6MP...] cyclosporine, methotrexate), and JAK inhibitors (such as tofacitinib, (Xeljanz), Should continue their meds!.
  • Biologics/Biosimilars: If you are on Biologics including certolizumab pegol (Cimzia), adalimumab (Humira), infliximab (Remicade), golimumab (Simponi), infliximab-abda (Renflexis), infliximab-dyyb (Inflectra), infliximab-qbtx (Xifi), ustekinumab (Stelara), and vedolizumab (Entyvio), Do NOT stop taking these medications.
  • We feel it is extra important to do social distancing (avoid crowds, limit public transit, no shaking hands, etc.) and avoid any unnecessary travel. (As a doctor added: Although not possible for all, we would recommend seeing if it is feasible to work from home.)
  • If you are taking steroids: One consideration for medications is that if you are on oral steroids (prednisone/prednisolone, Budesonide Entocort EC, UCERIS), we would recommend discussing with your primary gastroenterologist if possible to taper (lower your dose) or discontinue these medications.
  • The number 1 best way to prevent COVID-19 remains good hand hygiene. This includes washing hands multiple times a day (especially before eating and after going to the bathroom) with soap and water (for at least 20 seconds) or hand sanitizer with at least 60% alcohol. 
  • This is a rapidly evolving situation so we recommend regularly checking the CDC website for updates.
  • If you feel sick, please contact your gastroenterologist, so they can guide decisions on stopping medications and when to seek in-person care.

STAY SAFE!!!

Friday, October 4, 2019

Yom Kippur info. A Git Gebencht Yur! Have an Easy fast!

This is sponsored by
Thrivewell Infusion
A new state-of-the art infusion center, with comfortable and convenient private suites, where everything is running in the most timely manner. 

Thrivewell Infusion is located at the Brooklyn Square in Boro Park, 1428 36th St. Suite 107, Brooklyn, NY 11218.

Call 212-803-3339 to schedule your next infusion, and they will take care of the rest! 

If you require any further information, feel free to contact us, If we can be of assistance, please do not hesitate to contact us.
***

We at עול"ם - The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family again, a good and sweet, and prosperous year. A year filled with Good health, well-being, happiness, success, Nachas, Parnasah and all you need. May we all be inscribed and sealed in the Book of Life. 

As a reminder, please discuss with your Rabbe/Rav/Dayan AND Doctor regarding your fasting, taking your medications, and/or about taking IV (Intravenous) fluids.


***

After we were asked by a lot of our members, we're sending a list of IV Center's provided by our heroic Chevra Hatzolah

The providers where you should call to arrange are asking you to call early enough so they should have the Fluids and it should not take that long for them! Remember, they are volunteers! 

Williamsburg:

On Yom Kippur (IV Center):


For more info please call Chevra Hatzalah’s special line: 718-534-5050 Ext. 0 

*

Boro Park:

On Yom Kippur (IV Center):

  • Bobov Shul, 1533 48th St. - from 8:00am to 7:00pm
  • Belz Shul, 1321 43rd St. - from 8:00am to 7:00pm
  • Statcare, 1270 51th St. - from 8:00am to 7:00pm
  • Brizdovitz Shul, 1721 58th St. - from 8:00am to 7:00pm 

For house calls (Only if necessary) or for more info please call Yachad D’Bobov Bikur Cholim: 718-851-2500 

*

New Square:


*

Kiryas Yoel, Monroe:


*

Lakewood:

  • Please call -If possible text, with prescription details- the Lev Rochel Bikur Cholim of Lakewood, 732-905-3020 to arrange it. 

*

Montreal:

  • Please call Refuah V'Chesed, 514-357-2167 Ext. #108. 

*

REMEMBER: The same Torah which commands us to fast on Yom Kippur tells us that "V’Nishmartem M'od L’Nafshotaichem" - "Take care of your health/guarding our health" is far more important. 

Again, you need a prescription in order to get the IV, no exceptions! So please make sure to have it!

Have an easy fast!!! גמר חתימה טובה

Wednesday, July 10, 2019

Do you shop on AMAZON?

As Amazon Prime day approaches, (July 15& 16), we would like to ask you to add us as your preferred charity, As AmazonSmile donates to JCCSG Inc when you shop at smile.amazon.com.

You can make a difference while you shop Amazon Prime Day deals on July 15 & 16 – and actually all the time.... by simply shopping at smile.amazon.com/ch/45-4927458 and AmazonSmile donates to JCCSG.

You will still receive the same great results, selection of Amazon products, same low price, same Prime, and the same service, like when using Amazon.com directly, Only your web shopping portal will change, and you get to support our mission at no cost to you.

REMEMBER, Please use smile.amazon.com/ch/45-4927458 to shop!

Every penny counts!!!

Thanks in advance!

Wednesday, April 17, 2019

Pesach 2019 Notification

וואס טרינק איך פאר די ארבע כוסות? מעג איך עסן מצה ומרור?י

הערט א נייע אינפארמעטיווע און וויכטיגע אינטערוויו מיט אינפארמאציע און אנווייזונגען וואס איז ספעציעל נוגע פאר קראונס און קאלייטיס פאציענטן אום פסח, ווי מ'שמועסט אויס די שיעורי מצה, מרור, און ד' כוסות
אויפן קול מבשר האטליין, 212-444-1100
דאן דריקט 1-1-4

אויב הערט איר עס נאכנישט (ביי די קנעפל ווערט כסדר צוגעלייגט פרישע אינטערוויו'ס..) דאן דריקט די # קנעפל, ביז איר קומט אן צו די אינטערוויו. עס הייבט זיך אן "דעי אינטערוויו איז געאייגענט פאר אידן מיט קראונס...",י

די שיעור איז איבערגעגעבן געווארן דורך ידידינו היקר, וידיד כל בית ישראל
הרב אלעזר דוד פאללמאן שליט"א
ממייסדי ומראשי חברי וועד הנהלת ארגונינו עול"ם 

פאר אן אלטע אינטערוויו דריקט 3-1 פון די מעין מעניו און דערנאך 1558#
וזאת למודעה: אלעס וואס עס ווערט אויסגעשמועסט אויף די אינטערוויו'ס, איז אויסגעארבייט געווארן אדורך גדולי מורי הוראה, בעלי נסיון... וד"ל​

פאר סיי וואספארא פראבלעם איר האט אום יו"ט און איבערן גאנץ יאר קענט איר אונז רופן אויף

חג כשר ושמח!!!י

As the Yom Tov Pesach is approaching, we would like to Invite you to listen to a NEW important and informative interview in​​ Yiddish, discussing the Halachas regarding Arba Kosos, Shiurim of Matzah and Maror, and more.

You can listen to it on the Kol Mevaser Hotline, at 212-444-1100, press 1-1-4.
Please note: that section is being updated alot, so if you don't hear the interview with Rabbi Eluzer Duvid Follman, JCCSG Board Member, press # as many times needed until you hear the interview...

For a previous Shiur/Interview, press 3-1 on the main menu, and then 1558#

For any issue or emergency feel free to call us anytime, even during Shabbos/Yom-Tov, 718-635-2274.

Please forward this email to all patients and their families who may benefit.

​​We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!

***

Announcing the Grand Opening in Baltimore of 
The SCD PANTRY!

We are a Gemach stocked with products in compliance with the Specific Carbohydrate Diet

For more information or to place an order please contact Batsheva Frank or Chavi Frank by email: thescdpantry@gmail.com or call/text: 347-306-2051

We are finalizing the details about opening one in Williamsburg. If you want to get involved and help us, please contact us! (Want to help at another location? Let us know!)

Wednesday, March 20, 2019

Purim Alert

PURIM ALERT!!!


A friendly reminder about the danger of mixing certain medications with alcohol. In some cases, alcohol interactions may decrease the effectiveness of medications or render them useless. In other cases, alcohol interactions may make drugs harmful or even toxic to your body, even in small amounts!

We witnessed many patients taking Flagyl - Metronidazel and they drank alcohol having very unpleasant and some even life-threatening side effects, Therefore if you're taking Flagyl - Metronidazel, do NOT drink! (We pointed out one Antibiotic, but there are many more other medications with the same danger).

In any case, each and every Crohn's and Colitis patient should double check with their doctor if drinking alcohol while taking your medication is safe, and if you're allowed to drink even a drop!

Please be responsible! Do it for yourself and for your family.

A Freilichen Purim! And Tumid B'Simcha!

Thursday, December 13, 2018

Reminder: TONIGHT! Symposium in Five Towns

Reminding you about TONIGHT's "Educational and Support Event" in the Five Towns

Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

Ps. There will NOT be a Live Online Video hookup, nor Teleconference! Will let you know if there will be any recordings.

We hope to see you all there!

Wednesday, December 5, 2018

Five Towns, here we come!

Dear Member,

The Overwhelming demand and the positive feedback have inspired us to forge ahead with subsequent events, we are pleased to invite you to an informative and insightful Educational Symposium & Support Event for Patients, Husbands, wives, parents, and caregivers of people suffering from Crohn's Disease and Ulcerative Colitis.

The event will take place Thursday, December 13, 2018, 7:30pm promptly, At The White Shul, 728 Empire Avenue, Far Rockaway, NY 11691. Parking available in adjacent parking lot.

Featuring:
Current Therapies in IBD
Dr. Arun Swaminath, M.D.
Director, Inflammatory Bowel Disease Program, Division of Gastroenterology Hepatology and Nutrition, Lenox Hill Hospital, Northwell Health
*
Pediatric IBD, Growing and developing:
Dr. Tuvia A. Marciano, D.O.
Chief of Pediatric Endoscopy, Director of Pediatric Inflammatory Bowel Disease, Vice Chairman, Institutional Review Board, Division of Pediatric Gastroenterology and Hepatology, NYU Winthrop University Hospital, Assistant Professor of Pediatrics, Stony Brook School of Medicine
*
Hidden heroism: 
How life changes when you or your loved one has IBD
Dr. Norman Blumenthal, PHD
Licensed Psychologist, Zachter Family Chair in Trauma and Crisis Counseling, Director, OHEL Miriam Center for Trauma, Bereavement and Crisis Response, OHEL Children's Home and Family Services
*
Followed by a Q&A Session.
Feel free to submit your questions by emailing us in advance, as we will only be able to accept minimal questions at the event.

***
For more information or any help feel free to contact us,
at 718-63-JCCSG (718-635-2274) or by email: Info@JCCSG.org

***
Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

We hope to see you all there!

Wednesday, November 14, 2018

Reminder: TONIGHT! Evening of Comedy in Baltimore!

Reminding you about TONIGHT's "Baltimore Evening of Comedy" Starring famous Comedian and Actor, Mendy Pellin

Wednesday, November 14, 2018, at 8:00 pm, at the home of Judy (Bregin) Gross, 3415 Bancroft Rd, Baltimore, MD 21215

Feel free to contact us with any questions or suggestions at Baltimore@JCCSG.org, or call us at 410-989-2005. 

Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

We hope to see you all there!


Sunday, October 28, 2018

Baltimore Evening of Comedy!

We are so excited to announce our Baltimore

"Evening of Comedy"
starring Mendy Pellin, famous Comedian and Actor! 

It will take place Wednesday, November 14, 2018, at 8:00 pm, at the home of Judy (Bregin) Gross, 3415 Bancroft Rd, Baltimore, MD 21215

Feel free to contact us with any questions or suggestions at Baltimore@JCCSG.org, or call us at 410-989-2005. 

Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

We hope to see you all there!

Sponsorship still available!

Friday, October 26, 2018

We are Hiring! Director of Developments


We are looking to add an associate to our team.

We are currently looking for a Director of Developments.

This position entails implementing a marketing strategy, spreading awareness of the organization and its cause, engendering community and volunteer participation, networking and communications, planning and organizing annual Fundraiser and other events and performing related duties.

Requirements:
  • Ability to work with a wide range of individuals.
  • Ability to multitask and meet deadlines.
  • Experience in related work.
  • Excellent oral and written communication skills.
  • Highly aggressive, Motivated and enthusiastic. 
  • Marketing, Branding and Advertisement knowledge.
  • Professional and personable manner.

Great potentials for the right candidate!

If you're interested or know anyone that might be, please email us at Info@JCCSG.org

(ps. Feel free to forward this...)

Monday, September 17, 2018

Yom Kippur info. A Git Gebencht Yur! Have an Easy fast!

We at עול"ם - The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family again, a good and sweet, and prosperous year. A year filled with Good health, well-being, happiness, success, Nachas, Parnasah and all you need. May we all be inscribed and sealed in the Book of Life.

As a reminder, please discuss with your Rabbe/Rav/Dayan ANDDoctor regarding your fasting, taking your medications, and/or about taking IV (Intravenous) fluids.

***

After we were asked by a lot of our members, we're sending a list of IV Center's provided by our heroic Chevra Hatzolah

The providers where you should call to arrange are asking you to call early enough so they should have the Fluids and it should not take that long for them! Remember, they are volunteers! 

Williamsburg:
On Yom Kippur (IV Center):
For more info please call Chevra Hatzalah’s special line: 718-534-5050 Ext. 0

*
Boro Park:
On Yom Kippur (IV Center):
  • Bobov Shul, 1533 48th St. - from 8:00am to 7:00pm
  • Belz Shul, 1321 43rd St. - from 8:00am to 7:00pm
  • Statcare, 1270 51th St. - from 8:00am to 7:00pm
  • Brizdovitz Shul, 1721 58th St. - from 8:00am to 7:00pm
For house calls (Only if necessary) or for more info please call Yachad D’Bobov Bikur Cholim: 718-851-2500

*
New Square:
  • Please call: 845-659-5886 to arrange it.

*
Kiryas Yoel, Monroe:
  • Please call: 845-537-0014 to arrange it.

*
Lakewood:
  • Please call the Lev Rochel Bikur Cholim of Lakewood, 732-905-3020 to arrange it.

*
Montreal:
  • Please call Refuah V'Chesed, 514-357-2167 Ext. #8.

*

REMEMBER: The same Torah which commands us to fast on Yom Kippur tells us that "V’Nishmartem M'od L’Nafshotaichem" - "Take care of your health/guarding our health" is far more important.

Again, you need a prescription in order to get the IV, no exceptions! So please make sure to have it!

Have an easy fast!!! גמר חתימה טובה

***

If you have a Medical emergency, you call us anytime, 24/7/365, even during Shabbos/Yom-Tov, 718-635-2274

Thursday, September 6, 2018

L'Shana Tova - לשנה טובה

 

At this time of year, we at עול"ם ~ The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family a happy and prosperous year; It shall be a year of Nachas and Parnasah, and of course a Healthy year...

As we look back upon the year past, we are proud that we have made some significant accomplishments this year:

First of all... We played the key role in passing the Crohn's & Colitis Fairness Act - NY State Restroom Access Act, and got it signed by the governor, our Advocacy was proudly praised by elected legislators, especially by Senator Simcha Felder, and we are finalizing the printing of the cards, soon to be announced how and where you can get it!

We provided Medical referrals, As expediting wait time for faster appointments, and easier access to top medical care for hundreds of people who reached out to us, And saved lots of money to them. While connecting with more doctors and hospitals throughout New York, New Jersey, Philadelphia and Maryland.

We gave Support, as visiting in the hospital, while working with the Medical professionals to open lines of dialogues between patients and physicians, to promote better adherence to medications and other treatments. To demystify the diseases & surgical options.
And Provided post-surgical respite services, to go away and rest up!

We supplied Information for over a thousand people and their families, B"H navigated Shidduhim, formulating and sharing the correct medical information to all parties involved to help alleviate concerns. מזל טוב to those who got engaged!

We were able to spread awareness while giving interviews for the Bina and Wellspring Magazines.

More education with more events and our yearly Ladies support group gathering, which featured An Integrative Approach in IBD and Shining through your inner core.

In addition to the continuous efforts in research in better understanding IBD and hopefully a Road to prevention.

Last but not least… our outstanding Women’s Retreat! Where the participants got to leave their illness at the door and reconnect to their power for 3 days! They danced, celebrated, and Cried and Laughed together. They walked out with a breath of fresh air; ready to conquer whatever comes about with the new filled energy and self-awareness they received.

At this opportunity, we would like to express our deep appreciation for your ongoing support of our mission. Especially those who showed that they #Care, answered our call and donated campaign. A big shout out to the individuals who helped us raise money and had their own pages! It is only with your continuous dedication that we are able to improve the quality of life for the people affected by Crohn's and Colitis and their families.

!כתיבה וחתימה טובה! שנה טובה ומבורכת

Thursday, June 7, 2018

You can't join full 3 days? We listened!

We listened!


To those of you who wanted to join our fabulous retreat program, but can't make it for the full three days.

We put together a program for Monday, June 11th to give you all an opportunity to join us in on the fun! 

You don’t have to miss out!

Join us for an evening of friendship, fun, and support!
  • 5:00-6:00 - Supper (Specialty diet food available) 
  • 6:00-7:30 - Special exciting program
  • 7:30-10:30 - Dance Party with Shimi Adar!!

To RSVP: call 347-829-JCCS - 347-829-5227 or email Support@JCCSG.org

Ps. Inquire about our private ostomy Support group