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Friday, April 20, 2018

Crohn's & Colitis Fairness Act - Restroom Access Act is a LAW

Restroom access act in New York State is finally law!
On Wednesday Governor Andrew Cuomo signed into law the Crohn's and Colitis Fairness Act. 
 
This could not have happened without the incredible support we got from you - you all have had a profound impact on the lives of the nearly 105,000 IBD patients in New York!

Please stay tuned for updates and further details.

Monday, April 16, 2018

Mazel Tov Mrs. Sobol

מזל טוב

We would like to wish a hearty Mazel Tov to our dear friends Dr. Srayah & Mrs. Shana Sobol, JCCSG Baltimore Division Coordinator, upon the wedding of their daughter.

Mrs. Sobol is someone who has put her heart and soul into assisting Crohn's and Colitis sufferers, and so skillfully conducts the support group gatherings in Baltimore, Maryland, with much tact.

May they have much Nachas from this couple and from their whole family along with health, wealth and abundant happiness. Let her be Zoche to fulfill her mission of improving the quality of life for people affected by Crohn's and Colitis and for their families with success and Brucha at all times.


Wishing you
Yoely Drummer
Founder & Executive Director
In the name of the entire Board and all our members

Thursday, March 29, 2018

Updated Pesach Notification

הערט א נייע אינפארמעטיווע און וויכטיגע אינטערוויו מיט אינפארמאציע און אנווייזונגען וואס איז ספעציעל נוגע פאר קראונס און קלייטיס פאציענטן אום פסח
אויפן קול מבשר האטליין, 212-444-1100
דאן דריקט 1-1-4
אויב הערט איר עס נאכנישט (ביי די קנעפל ווערט כסדר צוגעלייגט פרישע אינטערוויו'ס..) דאן דריקט די # קנעפל, ביז איר קומט אן צו די אינטערוויו. עס הייבט זיך אן "ערבי פסחים תשע"ח, פאר די אלע וואס ליידן פון קראונס...",י
די שיעור איז איבערגעגעבן געווארן דורך
הרב רבי אלעזר דוד פאללמאן שליט"א
מראשי חברי הנהלת ארגונינו עול"ם 

פאר די פאריעריגע אינטערוויו דריקט 3-1 פון די מעין מעניו און דערנאך 1558#
וזאת למודעה: אלעס וואס עס ווערט אויסגעשמועסט אויף די אינטערוויו'ס, איזאויסגעארבייט געווארן אדורך גדולי מורי הוראה, בעלי נסיון... וד"ל 

פאר סיי וואספארא פראבלעם איר האט אום יו"ט און איבערן גאנץ יאר קענט איר אונז רופן אויף
718-635-2274

As the Yom Tov Pesach is approaching, we would like to Invite you to listen to a NEW important and informative interview in Yiddish, discussing the Halachas regarding Arba Kosos, Shiurim of Matzah and Maror, and more.
You can listen to it on the Kol Mevaser Hotline, at 212-444-1100, press 1-1-4.
Please note: that section is being updated a lot, so if you don't hear the interview with Rabbi Eluzer Duvid Follman, JCCSG Board Member, press # as many times needed until you hear the interview...

For the last year Shiur, press 3-1 on the main menu, and then 1558#

For any issue or emergency feel free to call us anytime, even during Shabbos/Yom-Tov, 718-635-2274.

חג כשר ושמח!!!י

We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!

Sunday, March 25, 2018

Pesach Notification

וואס טרינק איך פאר די ארבע כוסות? מעג איך עסן מצה ומרור?י

הערט א גאר אינפארמעטיווע און וויכטיגע אינטערוויו מיט אינפארמאציע און אנווייזונגן וואס איז ספעציעל נוגע פאר קראונס און קלייטיס פאציענטן אום פסח
אויף קול מבשר, 212-444-1100 
און דריקט 3-1 דערנאך 1558#
וזאת למודעה: אלעס וואס עס ווערט אויסגעשמועסט אויפן אינטערוויו, איז אויסגעארבייט געווארן אדורך גדולי מורי הוראה 

פאר סיי וואספארא פראבלעם איר האט אום יו"ט און איבערן גאנץ יאר קענט איר אונז רופן אויף 718-635-2274

As the Yom Tov Pesach is approaching, we would like to Invite you to listen to an important and informative interview in Yiddish, discussing the Halachas regarding Arba Kosos, Shiurimof Matzah and Maror, and more.
You can listen to it on the Kol Mevaser Hotline, at 212-444-1100, press 3-1, and then 1558#

Pesach is a favorite holiday, we all gather with our families and discuss the miracle of our redemption and remember the freedom granted to us by Hashem. In that remembrance, we have the Seder, Matzah, and Arba Kosos. To most, these appear to be fun parts of the holiday to approach joyously. But to a Crohn’s or Colitis patient, it can be slightly nerve inducing as the least digestive friendly holiday approaches.

First, it is important to remember that many medications interact with alcohol. Be wary of this and ask your physician before consuming your Arba Kosos. remember, if you are taking Antibiotics (As Flagyl – Metronidazol and same goes to a lot of other) you are not allowed to drink any alcohol! All other IBD patients should please double check with your doctor if the effectiveness of your medication will not be decreased or render them useless while mixing them with alcohol

Simply skipping medication is not the answer to the very real problem! You should exercise extreme caution and consult with your doctor and Rabbi/Rav before deciding not to take a medication on Pesach As important as one treats the laws of Kashrus, one is also obligated to treat the Mitzvah of "V'Nishmartem M'Od L'Nafshotaichem" - "Take care of your health". Therefore, under no circumstances should an individual forego taking a prescribed medication of Pesach (and during the year...) without first consulting one's physician and Rav for a careful analysis of the situation.

Second, Matzah is notoriously harsh on the stomach, and in order to stay healthy and safe, you have to take precautions. Speak with your physician and your Rav about how you should approach eating matzah this coming Pesach, all information on the above-mentioned Yiddish Interview has been discussed and guided by Rabbanim.

Please call your doctor if you have any issues, if you have a problem reaching your doctor, feel free to contact us anytime, we will try our best to get you through. Do not hesitate to call us anytime.

For any issue or emergency feel free to call us anytime, even during Shabbos/Yom-Tov, 718-635-2274.

Please forward this email to all patients and their families who may benefit.

Big Thanks to Abigail Winokur for the help!

We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!

Sunday, March 18, 2018

JCCSG Redemption Retreat

We are excited to present our long-awaited REDEMPTION HEALING RETREAT for women with Crohn’s or Ulcerative Colitis.



At the JCCSG, we honor more than just your medical needs and treatment. As members of the Crohn’s and Colitis community ourselves, we recognize the vital role prevention plays in our health. We are committed to surviving, but it’s time to experience thriving!

We know how it feels to lose control, to lose our sense of self, when it feels like illness has taken over and leads the way.
We know the drain, the shame, and the humiliation of managing our symptoms on a daily basis.
We have all experienced the broken dreams and shattered hopes. We understand because due to illness, we’ve also been scared to begin dreaming again.

But we also know that we don’t have to live our lives this way.

Our inaugural retreat is geared toward Jewish women who share the struggle and burden of illness, but know that there is so much more to life. This is for the woman who is ready to take a deeper look, to make new friendships, laugh, have fun, and work with trained professionals to receive the knowledge and tools to thrive.
​​
Redemption begins within. Join us for an experience of community, growth and healing this June 10-12. Slots are filling up quickly! Save your slot now! 
Sign up HERE
​​​
To make this retreat available to benefit as many people possible, we took upon ourselves to cover most of the expenses, and charging you way below the cost, it’s only $399.00, Which includes 3 days and 2 nights of accommodations, including food and supplies.

Early bird special: sign up before March 30, for only $349.00

And to make it even easier, we are offering an installment plan as well, go up on the site and check your options.

For more information contact: support@jccsg.org or call 347-829-5227

***
JCCSG is expanding our support network to benefit men with these diseases as well as create a branch for parents of children with Crohn’s and Colitis. If you or someone you know is interested in our future retreats and available support options, please email us at support@jccsg.org, or call us at 718-63-JCCSG (718-635-2274) and we will keep you posted of future updates and events. 

We strongly value your comments, feedback, and insight which will enable us to better serve our members and the community as a whole.

Tuesday, February 27, 2018

​​PURIM ALERT!!!

PURIM ALERT!!!

A friendly reminder about the danger of mixing certain medications with alcohol. In some cases, alcohol interactions may decrease the effectiveness of medications or render them useless. In other cases, alcohol interactions may make drugs harmful or even toxic to your body, even in small amounts!

We witnessed many patients taking Flagyl - Metronidazel and they drank alcohol having very unpleasant and some even life-threatening side effects, Therefore if you're taking Flagyl - Metronidazel, do NOT drink! (We pointed out one Antibiotic, but there are many more other medications with the same danger).

In any case, each and every Crohn's and Colitis patient should double check with their doctor if drinking alcohol while taking your medication is safe, and if you're allowed to drink even a drop!

Please be responsible! Do it for yourself and for your family.

A Freilichen Purim! And Tumid B'Simcha!

Monday, February 26, 2018

JCCARES: Help us reach our goal by showing YOUR #care!


And we are half way through!

Please honor our Patron's by donating on their page! (Click the link below)

Or a General donation (Click link below) 

Please donate now on my page (Click the link below)

As most of you know, We provide Medical referrals for a wide range of doctors in the field, expediting wait time for faster appointments, and easier access to top medical care. We work on daily basis with the Medical professionals to open lines of dialogues between patients and physicians, to promote better adherence to medications and other treatments. To demystify the diseases, surgical options, fertility and intimacy issues.

Thursday, February 22, 2018

DID YOU DONATE???


Please honor our Patron's by donating on their page! (Click the link below)
Or a General donation (Click link below) 
 
Or you can donate now on my page 
(Click the link below)

Sunday, February 18, 2018

JCCARES - Show Your #CARING Side! - ​Become a PATRON!


For the past seven years, we at the JCCSG were here for you 24 hours a day, 7 days a week, 365 days a year, doing everything possible to improve the quality of life of children and adults affected by Crohn's Disease and Ulcerative Colitis. We have helped people alleviate their struggle to survive the difficulties of these diseases. We have provided general information, assisted with medical referrals, expedited appointments, launched educational symposiums and support group events.


We are now faced with the need to expand our services with the goal of creating a greater network of support for Crohn's and Colitis sufferers and their loved ones.
​ ​
In addition to the help of providing post-surgical respite services, we are expanding to provide services such as getaway retreats (Stay tuned for the announcement in the next few days…), life coaching, coping skills, emotional support, house cleaning help, suppers, and babysitting for those needing to travel for endless appointments and on-going hospital stays.

With hundreds relying on us for help, we need your help to expand our efforts exponentially.
Here we are with a plea to all of you: Please help us out so all the requests of our members should be answered and fulfilled!
Any donation, no matter how small, will go a long way in making it all possible.
 
You can donate now on my page 

Or you can donate on anyone’s page 
Or a General donation at 

​​
Become a PATRON!

Open your own personal fundraising page, Set your goal and raise money and awareness! by signing up at


It's simple and easy! If you need help, please contact us by replying to this email, or call me.
We appreciate your help and look forward to your generous contribution.

And we would really appreciate if you can forward this email to your friends and family, or even post it on your social media groups…
 

Tuesday, January 9, 2018

Road To Prevention

PLEASE TAKE A MINUTE AND READ WHAT WE WROTE BELOW!

Dear Member,

We are reaching out to you again because we need your help!

As someone with Crohn's disease or Ulcerative Colitis, or as a caregiver of someone who has it, you surely know that sadly we currently don´t know what causes Inflammatory Bowel Disease (IBD), which makes it impossible to find a cure.

We do know that there are key genes that play an important role in deciding who will develop IBD, and that the Jewish Ashkenazi community is at particularly higher risk due to unique genes that the Doctors at Mount Sinai Hospital have discovered. We also know this is only one part of the story.

Over the past few years, the Doctors at Mount Sinai Hospital have successfully acquired new information telling us that the bacteria that live inside our gut may be another important factor involved in causing IBD.

The studies suggest that there are certain types of bacteria that are protective against IBD and some that are playing a role in causing it.

We believe that these harmful bacterias are present before the inflammation even occurs in the intestine.

If we can successfully identify these bacteria, we can then find a way of altering them by diet or medication so that we can with Hashem's help, prevent them from causing IBD. The fastest way to get to the bottom of this would be to study genetics and bacteria (gut flora) of people who are affected and unaffected by IBD within the same family (multiplex families).

The Doctors of Mount Sinai Hospital and the Jewish Crohn's and Colitis Support Group (JCCSG) believe that by working in this direction we can find a way to prevent the disease from ever happening in the first place.

Here is how you can help:

As you probably already know, We at the ‘Jewish Crohn’s and Colitis Support Group’ (JCCSG) partnered with the Susan and Leonard Feinstein IBD Clinical Center at Mount Sinai Medical center about the "Road to Prevention" program dedicated to studying life before IBD.

For this program to be successful they/we will need to collect a small amount of blood, saliva, and stool from all family members including those with and without IBD. Together we can navigate the road to prevention and help our future generations to come.

Contact us at
718-63-JCCSG
(718-635-2274)
or email us at

Self-understood, participation is strictly confidential, and privacy protected!

We are looking forward to your cooperation and participation, Stay tuned!

We would be delighted to hear from you. The more participants the greater the potential impact of the research. Your participation is much appreciated.

Sunday, December 17, 2017

Dedicated to health: 10 Questions

Dedicated to health: 10 Questions we were asked by the Wellspring Magazine, regarding our work, and to know what it means to live with Crohn's disease and Ulcerative Colitis.

Find The Wellspring as a monthly insert in Ami Magazine or at your local pharmacy or health food store. For the PDF version and for back issues, visit http://www.wellspringmagazine.com/issue.php?vol=23653975/56351880




Wednesday, November 22, 2017

Yearly Ladies get-together

Join us at our LADIES GET-TOGETHER, an uplifting and inspiring experience, an afternoon of awareness, support, information, unity, and joy, for women with Crohn's Disease & Ulcerative Colitis. Come together to celebrate your inner light within you

Sunday, December 10, 2017
12:00pm promptly
At the Machon High School, 2nd floor
1683 42nd St., Brooklyn, N.Y. 11204


Featuring:

“An Integrative Approach to IBD”
By: Dr. Alexandra ShustinaMD
Founder, Manhattan Integrative GI center, Integrative Gastroenterologist, Board Certified in Internal Medicine & Gastroenterology, Trained in Functional & Holistic Medicine

“Shining through your inner core…”
Workshop by the inimitable Rachel Welfeld

Light/SCD diet refreshments will be served


RSVP REQUIRED by Wednesday, 12/6
Email: Support@JCCSG.org  ●  Text: 917-676-6358

Help us spread the word. Should you know someone who might benefit, please send them a link to this, they might not be on our mailing list…

Co-Sponsored by: Crohn's Colitis Foundation



​ ​

Thursday, September 28, 2017

Yom Kippur info. A Git Gebencht Yur! Have an Easy fast!

We at עול"ם - The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family again, a good and sweet, happy and prosperous year. A year of Nachas and Parnasah and all you need. And of course a Healthy year. May we all be inscribed and sealed in the Book of Life.

As a reminder, please discuss with your Rabbe/Rav/Dayan AND Doctor regarding your fasting, taking your medications, and/or about taking IV (Intravenous) fluids.

*

After we were asked by a lot of our members, we're sending a list of IV Center's provided by our heroic Chevra Hatzolah

The providers where you should call to arrange are asking you to call early enough so they should have the Fluids and it should not take that long for them! Remember, they are volunteers! 

Williamsburg:
Erev Yom Kippur (Starting the IV line):
  • ODA, 14 Heyward St.
  • Quality Health Center, 432 Bedford Ave.

On Yom Kippur (IV Center):
  • ODA, 14 Heyward St. - from 10:00am till 4:00pm
  • Quality Health Center, 432 Bedford Ave. - from 10:00am till 4:00pm
  • Chai Care, 735 Bedford Ave. - from 12:00pm till 6:00pm

For more info please call Chevra Hatzalah’s special line: 718-534-5050 Ext. 0

Boro Park:
Erev Yom Kippur (Starting the IV line):
  • Bobov Shul, 1533 48th St. - from 1:00pm to 5:00pm

On Yom Kippur (IV Center):
  • Bobov Shul, 1533 48th St. - from 8:00am to 7:00pm
  • Belz Shul, 1321 43rd St. - from 8:00am to 7:00pm
  • Statcare, 1270 51th St. - from 8:00am to 7:00pm
  • Brizdovitz Shul, 1721 58th St. - from 8:00am to 7:00pm

For house calls (Only if necessary) or for more info please call Yachad D’Bobov Bikur Cholim: 718-851-2500

New Square:

Kiryas Yoel, Monroe:

Lakewood:
  • Please call Lev Rochel Bikur Cholim of Lakewood, 732-905-3020 to arrange it.

Montreal:

REMEMBER: The same Torah which commands us to fast on Yom Kippur tells us that "V’Nishmartem M'od L’Nafshotaichem" - "Take care of your health/guarding our health" is far more important.

Again, you need a prescription in order to get the IV, no exceptions! So please make sure to have it!

Have an easy fast!!! גמר חתימה טובה

Tuesday, September 19, 2017

Video of Tamar Feldman in Baltimore - L'Shana Tova! - Please help us!

Dear member,

Attached is the link to watch (on YouTube) the Lecture of Tamar Feldman, RDN CDE, discussing Inflammatory Bowel Disease and Healing Dietary Solutions, Delivered in Baltimore, MD on July 23.


***
At this time of year, we at עול"ם ~ The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family a happy and prosperous year; It shall be a year of Nachas and Parnasah, and of course a Healthy year.

As we look back upon the year past, we are proud that we have made some significant accomplishments this year, We provided Medical referrals, Expedited appointments, for hundreds of people who reached out to us, We got huge discounts by specialists for the needy, we supplied information and support for over a thousand people and their families, we were able to spread our awareness, education and support mission in Crown Heights-Brooklyn NY, Baltimore MD, and Lakewood  NJ, while connecting with more doctors and hospitals throughout New York, New Jersey, Philadelphia and Maryland. In addition to the continuous efforts in research in better understanding IBD and hopefully a Road to prevention. We had a key role in passing the Crohn's & Colitis Fairness Act - NY State Restroom Access Act in Assembly and in Senate. 

At this opportunity, we would like to express our deep appreciation for your ongoing support of our mission. It is only with your continuous dedication that we are able to improve the quality of life for the people affected by Crohn's and Colitis and their families.


Please help us so we'll be able to help you better!

The JCCSG has been founded with more than 6 years ago to help those struggling with Crohn's Disease and Ulcerative Colitis. Over the past few years, we have helped people alleviate their struggle to survive the difficulties of these diseases. We have provided general information, assisted with medical referrals, launched educational symposiums and support group events.

In the last year, we have spent a lot of resources to improve and strengthen connections with doctors to be able to expedite appointments, to provide support for those struggling with the disease and their families, and to arrange support gatherings. We also have many great ideas in the pipeline for the future.

We never asked our beneficiaries for any fee, and intend to continue to do so for as long as we can. However, we need financing to be able to launch our new website and many new projects and keep up with the old ones.

Here we are with a plea to all of you: Please help us out so we'll be able to help you better! As of now, we can only depend on the people who know what Crohn’s/Colitis is… Any donation, no matter how small, will go a long way in making it all possible.

You can donate here: https://thechesedfund.com/cause/help-jccsg-to-help-others 

or call us with your credit card.


You can also send us a Chase QuickPay to: Info@JCCSG.org

Or you can send us a check, payable to JCCSG Inc., to:
JCCSG Inc.
146 Spencer St., Suite #5012
Brooklyn NY 11205


We are a 501(c)3 organization. All your donations are tax deductible. Feel free to email us for your official receipt.

​​
We appreciate your help and look forward to your generous contribution.

And we would really appreciate if you can forward this email to your friends and family, Or even post it on your social media groups… 

A Kesiva V'Chasima Tova!

!כתיבה וחתימה טובה! שנה טובה ומבורכת


All the best!
Yoely Drummer
Founder & Executive Director

In the name of our Board Members and all
​ ​
Your friends at עול"ם - JCCSG
עזרה וחיזוק לחולי מעיים
Jewish Crohn's & Colitis Support Group

Monday, July 17, 2017

Next event in Baltimore

On behalf of JCCSG – Baltimore Chapter, we are pleased to invite you to our next Symposium for education and support for sufferers of Crohn’s and Ulcerative Colitis.

Sunday, July 23rd, 2017, at 9:30 a.m.
The Towers Clubhouse,
3001 Fallstaff Rd.
Baltimore, MD 21209

Featuring:
Inflammatory Bowel Disease and Healing Dietary Solutions
By: Tamar Feldman, RDN CDE

For more information please email Baltimore@JCCSG.org or call our local office at 410-989-2005

Help us spread the word. Should you know someone who might benefit, please forward this, they might not be on our mailing list…

Ps. There will NOT be a Live Online Video hookup, nor Teleconference! Will let you know if there will be any recordings.