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Monday, August 15, 2016

August 2016 Update

Mazel Tov to Tzvi Yaakov Shapiro, our Lakewood event coordinator, to the birth of his baby Boy.
May he see a lot of Nachas with health and wealth.

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We are currently planning our next symposium and we would love your input.

There were suggestions on several issues, and we would appreciate your opinion and concerns regarding the topics to be addressed. We also have not yet decided on location; what do you say?

We're working hard to get this done; please help us out with an email or call us at 718-63-JCCSG (718-635-2274) with your advice and comments.

Thank you!

We'll keep you posted as event details are finalized.

Sunday, May 22, 2016

Re: "ROAD TO PREVENTION!" Event, June 5, in KJ Monroe

Dear member,

Enlightening update regarding the upcoming “ROAD TO PREVENTION” event in partnership and sponsored by Mount Sinai Hospital.

This will be a "Ladies Only" education program for Patients, wives, parents , caregivers AND non-effected family members alike, of people suffering from Crohn's Disease and Ulcerative Colitis,.

The event will take place on Sunday, פרשת במדבר, June 5, 2016. At the Hamaspik Terrace, 1 Hamaspik Way, Monroe NY 10950. Program to start 7:15pm Sharp!

Featuring:
  • ​​
    Mount Sinai IBD center history: the house Dr. Crohn's built:
Judy H Cho, MD, Professor Medicine, Gastroenterology and Professor Genetics and Genomic Sciences
  • The course of Crohn’s Disease and how it can behave:
Asher A. Kornbluth, MD, Clinical Professor of Medicine, Gastroenterology, Mount Sinai Hospital, and Founder and annual course director of the Mount Sinai IBD Consultants Course
  • Sooner is better: Why make an early diagnosis of IBD in children:
Keith Benkov, MD,  Associate Professor Pediatrics, Gastroenterology, Icahn School of Medicine, Mount Sinai Hospital
  • Genetics of IBD in the Ashkenazi Jewish population:
Inga Peter, PhD, Associate Professor, Department of Genetics and Genomic Sciences, Member, The Charles Bronfman Institute for Personalized Medicine‎, Icahn School of Medicine, Mount Sinai Hospital
  • How diet and our environment affect the bacteria inside our bodies:
Jeremiah Faith, PhD, Assistant Professor, Department of Genetics and Genomic Sciences, Assistant Professor, Medicine, Clinical Immunology‎, Icahn School of Medicine, Mount Sinai Hospital
  • Why prevention of IBD is possible:
Jean-Frédéric Colombel, MD, Co-director Susan and Leonard Feinstein IBD Center, Icahn School of Medicine, Mount Sinai Hospital,
  • Fertility and Future Generations: The Next Steps
Marla Dubinsky, MD, Chief Pediatric Gastroenterology and Hepatology, Co-director Susan and Leonard Feinstein IBD Center, Icahn School of Medicine, Mount Sinai Hospital
  • Followed by a question and answer panel
Please call 845-670-4522 or email with your questions in advance as we will only be able to accept minimal questions at the event.

Help us spread the word. Should you know someone who might benefit and is not on our mailing list forward this email.

For any other comments and suggestions, please feel free to contact us anytime by phone at our designated number 845-670-4522 or email.

We would be delighted to hear from you. Your participation is much appreciated!

Wednesday, May 4, 2016

"ROAD TO PREVENTION!" Event, June 5, in KJ Monroe

Dear member,

In response to requests from the people in Kiryas Yoel, Monroe, we are proud to announce our next very informative and insightful “ROAD TO PREVENTION” event in partnership and sponsored by Mount Sinai Hospital. Its goal is to raise awareness and give people an inside scoop of the ongoing research program.

This event will be held on Sunday, June 5, 2016, at the Hamaspik Terrace in Kiryas Joel, Monroe NY.

Stay Tuned for our future updates and feel free to contact us with all your concerns and comments. By phone at our designated number
845-670-4522 or email.

Help us spread the word. Should you know someone who might benefit and is not on our mailing list forward this.

We would be delighted to hear from you. Your participation is much appreciated!

Tuesday, March 22, 2016

Audio of Lakewood Event & Purim Alert!

Dear Member,

Here is the Dropbox link to download the Audio recording of the previous event in Lakewood.
JCCSG Event #9 - 3/2/16 - LRBCL Lakewood NJ

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PURIM ALERT!!!

We're sending this email early enough... it's a friendly reminder about the danger of mixing certain medications with alcohol. In some cases, alcohol interactions may decrease the effectiveness of medications or render them useless. In other cases, alcohol interactions may make drugs harmful or even toxic to your body, even in small amounts!

We witnessed many patients taking Flagyl - Metronidazel and they drank alcohol having very unpleasant and some even life threatening side effects, Therefore if you're taking Flagyl - Metronidazel, do NOT drink! (We pointed out one Antibiotic, but there are many more other medications with the same danger).

In any case, each and every Crohn's and Colitis patient should double check with their doctor if drinking alcohol while taking your medication is safe, and if you're allowed to drink even a drop!

Please be responsible! Do it for yourself and for your family.

A Freilichen Purim! And Tumid B'Simcha!

Wednesday, March 2, 2016

Reminder: TONIGHT

Dear Member,

This is just a friendly reminder to TONIGHT'S Symposium taking place At the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.

Starting with Marriv, & Siyam Mishnayos at 6:45pm promptly.

Patients, Husbands, wives, parents, caregivers and other Non-affected family members are invited and very welcome to attend. Familial support and awareness are important to those afflicted with this disease.

Your presence will greatly enhance the event. Come and be inspired. And please try to be on time so we should be able to start and end on time.

There will NOT be a Live online Video hookup, nor Teleconference!

Monday, February 29, 2016

Crohn's & Colitis Event, Wednesday, March 2, In Lakewood NJ

Dear Member,
 
Here we are with the final updates regarding the next event in conjunction with “Lev Rochel Bikur Cholim of Lakewood”, Co-Sponsored by the Crohn’s and Colitis Foundation of America (CCFA). on Wednesday, March 2, at the headquarters of the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.
 
  • 6:45 PM ­- Marriv, Siyam Mishnayos
In memory of R’ Avrohom Abba Ben R’ Chaim Kornbluth Z”L, Father of Dr. Asher Kornbluth 
  • 7:15 PM - Welcome and Introductions
​​
Yoely Drummer
Founder & Executive Director, Jewish Crohn’s & Colitis Support Group (JCCSG)
 
Rosemarie Golombos
Executive Director, Crohn’s & Colitis Foundation of America (CCFA) - NJ Chapter
  • 7:30 PM - Updates in Inflammatory Bowel Disease – A Patient Perspective:
Dr. James George, MD
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Clinical Instructor, Medicine and Gastroenterology, Mount Sinai Hospital
  • 8:00 PM - Treatment Approaches in IBD – Options to Consider:
Dr. Asher A. Kornbluth, MD
Clinical Professor, Medicine and Gastroenterology, Mount Sinai Hospital
  • 8:30 PM - Pediatric IBD: They are “not” just little adults:
Dr. Jonathan E. Teitelbaum, MD
Director, Pediatric Gastroenterology, Unterberg’s Children’s Hospital, Monmouth Medical Center 
  • 9:00 PM - Question and Answers session:
Panel by the three doctors
 
We look forward to welcome you at 6:45pm. No RSVP needed, The lectures are set to begin in a timely fashion, so please be punctual. There will NOT be a Live online Video hookup, nor Teleconference!
 
There will be a panel discussion to address questions that have been submitted prior to the event. Please submit any questions you may have and a selection of those questions will be responded to. You can submit it by sending us an email.

Please help us help you with letting your family know about this Event.  Pass the invitation or send us their email address to be added to our mailing list.

Tuesday, February 16, 2016

Siyum Mishnayos at next Lakewood Event

Dear member,

As noted, our next event, on Wednesday, פרשת ויקהל, March 2, 2016, which is taken place at the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, is dedicated ​​L’Ilui Nishmas (in memory) of R’ Avrohom Abba Ben R’ Chaim (Mr. Abraham) Kornbluth Z”L, Father of our dear friend, Dr. Asher Kornbluth, who will attend and talk about Treatment Approaches in IBD, Options to Consider.

In appreciation to the devoted Dr. Asher Kornbluth, we decided to add Marriv and a Siyum Mishnayos for Mr. Abraham Kornbluth Z”L, which will start at 6:45, followed by the event.

Here is a link for the Mishnayos, Please help as much as possible in taking some Mishnayos.
Siyum Mishnayas L’Ilui Nishmas R’ Avrohom Abba Ben R’ Chaim Kornbluth
If you can’t take a whole Mesachta, and would like to split with someone, feel free to email us, and will try to get you a partner.

http://www.thelakewoodscoop.com/news/2016/02/bikur-cholim-jccsg-to-host-crohns-and-colitis-education-symposium-support-event.html#sthash.EQwyjV7f.dpuf

Wednesday, February 10, 2016

Crohn's & Colitis Event, March 2nd, in Lakewood NJ - Update

Dear Member,

The Overwhelming demand and the positive feedback has inspired us to forge ahead with subsequent events, We -in 
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conjunction with the Lev Rochel Bikur Cholim of Lakewood- are pleased to invite you to a very informative and insightful Education Symposium & Support Event for Patients, Husbands, wives, parents and caregivers of people suffering from Crohn's Disease and Ulcerative Colitis, which is Co-Sponsored by the Crohn’s and Colitis Foundation of America(CCFA).

The event will take place on Wednesday, פרשת ויקהל, March 2, 2016, 7:15pm promptly, At the headquarters of the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.

Featuring:
  • Updates in Inflammatory Bowel Disease (IBD), a patient perspective:
Dr. James George, M.D.
Clinical Instructor Medicine, Gastroenterology, Internal Medicine, Mount Sinai Hospital
  • Treatment Approaches in IBD, Options to Consider:
Dr. Asher A. Kornbluth, M.D.
Clinical Professor Medicine, Gastroenterology, Internal Medicine, Mount Sinai Hospital
  • Pediatric IBD, they are ‘not’ just little adults:
Dr. Jonathan E. Teitelbaum, M.D.
Chief of the department of pediatric gastroenterology at the Children’s Hospital at Monmouth Medical Center in Long Branch – And Medical advisor for the Crohn’s and Colitis Foundation of America (CCFA), New Jersey chapter

This Event is dedicated L’ilui Nishmas of Mr. Abraham Kornbluth Z”L, Father of our devoted 
​​
Dr. Asher Kornbluth

הערב מוקדש לע"נ מוה"ר אברהם אבא ב"ר חיים קארנבליט ז"ל, מחשובי תושבי עיר התורה לעיקוואד יצ"ו - אביו של ידידינו היקר הרופא הנאמן, מסור בלב ונפש למען חולי ישראל, ועומד לימינינו בכל עת ועונה, דר. אשר קארנבליט הי"ו

For more information, or any help feel free to contact us, at 718-63-JCCSG (718-635-2274) or by email: Info@JCCSG.org.
Or the Lev Rochel Bikur Cholim of Lakewood at 732-905-3020 or by email: crohnscolitis@lrbcol.org
You can also Register Now! At 
http://online.ccfa.org/Lakewood2016

Thursday, January 28, 2016

Research firm looking for feedback from Crohn’s Patients in paid study

Shapiro+Raj, a medical market research firm, wants to talk with individuals with Crohn’s Disease as part of a paid, 60-minute phone with internet discussion aimed at facilitating understanding of your journey with Crohn’s Disease.

Participation is confidential, for research purposes ONLY. It is not related with sales. They follow the deidentification standard under HIPAA, as well as other security and privacy measures.


This is NOT a clinical trial. Participation will not involve any change to your treatment regimen. And they are specifically looking for Crohn’s patients who have never used a Biologic.


There is a considerable honorarium included for completion of a study, a payment of $125.00.


Slots available from Tuesday, February 2 to Thursday February 4.


To see if you qualify and to set up a convenient time, please call 312-321-8102. Reference project #683-909. Or visit:
http://bit.ly/1P0deUv
Or send us an email to Info@JCCSG.org with the subject: 'Shapiro+Raj Study', and will have them contact you.

Thursday, January 14, 2016

A loss to the IBD world, Dr. Present

It is with regret and sorrow that we wish to inform you that Dr. Daniel H. Present passed away at the age of 81.
The pain is still raw, and the loss so profound. Dr. Present was a strong advocate for our noteworthy organization JCCSG. He has been a source of advice, guidance, and affection ever since our inception. We vividly recall the time we met with him in year 2011, prior to founding our organization. Dr. Present spent over an hour with us, providing us with sound advice how to open this organization. His guidance and encouragement keep us going to this day.

Dr. Present, or Dan as he was fondly called, entered private practice in 1964. He quickly began to focus on the treatment of Crohn's disease and ulcerative colitis, bringing clinical trials into clinical practice. A brilliant, innovative, and charismatic figure, Dr. Present has played an integral role in the treatment of the disease, serving as a world renowned Gastroenterologist at Mount Sinai Hospital for over 54 years. He paved the way for the currents modes of treatments for Crown's disease.
Dr. Present took immense pleasure in his care and dedication for his patients. He derived joy from sparing his patients the pain, discomfort, and humiliation of inflammatory bowel disease by finding the right treatment. He tried to prevent surgery by all means whenever there was another possible medical solution. He spent many, many hours with his patients, more than any HMO would have allowed. He sat at their bedside and visited them late at night when they fell ill, and he shared their joy when they recovered.

Nothing made Dr. Present happier than seeing a college student returning to school or a former patient feeling well enough to plan a wedding or bear a child. The numerous people he has helped are his everlasting memory, and his many achievements in the field of medicine will be his immortal presence. May his virtuous soul rest in peace.

Funeral services will be held on Today, Thursday at 12:00pm at "The Riverside", 180 West 76th St., New York, NY 10023.

Friday, January 1, 2016

​Crohn's & Colitis Event, March 2nd, in Lakewood NJ

 
In response to requests from the people in Lakewood, New Jersey, we are proud to announce our next “Crohn’s and Colitis Education & Support Event”!
 
This event will be held in Lakewood, on March 2nd, in conjunction with, and sponsored by the Lev Rochel Bikur Cholim of Lakewood.


 
 
Please reserve the date. There will be more details to follow

Thursday, December 10, 2015

Survey: The impact of illness and attitudes towards genetic testing for IBD in the Ashkenazi Jewish population

Dear Member,

We would encourage everyone to take this short survey about “The impact of illness and attitudes towards genetic testing for inflammatory bowel disease (IBD) in the Ashkenazi Jewish population”. Both individuals with IBD and their unaffected family members are encouraged to participate.


http://j.mp/1iMbTXy


 The survey looks to assess the following:
  1. How living with IBD impacts a patient and their family members.
  2. How individuals receive their information about IBD and whether they are satisfied with the quality of education about IBD they receive.
  3. Attitudes towards genetic testing for IBD genes associated with developing IBD, treatment outcomes and testing of unaffected family members.
 
The purpose of this research study is to see how living with IBD impacts a patient and their family members, how individuals receive their information about IBD (At the Where do you currently receive information about IBD? you can check by Other and write in JCCSG… Thanks…) and whether they are satisfied with the quality of education on the disease they receive. Finally, the study looks to access attitudes towards genetic testing for IBD genes associated with developing IBD, treatment outcomes and testing in unaffected family members. You are being asked to take part in a research study because you are 18 years or older, of Ashkenazi Jewish descent and either yourself or your family members have a diagnosis of IBD.
 
You will be asked to complete an anonymous survey. Your participation in this study will take about 5 minutes. We expect that 100 people will take part in this research study.
 
You can choose not to answer any question you do not wish to answer. You can also choose to stop taking the survey at any time.
 
The possible risks to you in taking part in this research are:
  • Feeling uncomfortable answering questions about yourself or your family members…
 
The possible benefits to you for taking part in this research are:
  • Help researchers and clinicians working with IBD patients to understand the impact of living with or having a family member with IBD, as well as guiding what information may help those diagnosed with IBD. Additionally, helping to determine the communities desire for genetic testing in the future.
 
To protect your identity as a research subject, no identifiable information will be collected.
 
If you have any questions about this research, please contact the Researcher, Emily Boniferro, MSGC Candidate, at
(212) 824-9085.

A Freilichen Chanukkah!

Thursday, December 3, 2015

Baruch Dayan Ha’Emes

We are deeply saddened by the news of Mr. Avrohom Kornbluth's passing, father of our dear friend, Doctor Asher A. Kornbluth.

Dr. Kornbluth is sitting Shiva at 1414 Oakwood Ave. Lakewood, NJ 08701. Getting up on Motza Shabbos.
Phone Number:
732-363-5341

If you want, you can reply to us with your condolences words and we will forward it to him.

HaMakom Yenachem Et'chem B'toch Shar Avay'lay Tzion vee'Yerushalayim. (May the Omnipresent comfort you among the mourners of Zion and Jerusalem).