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Wednesday, December 5, 2018

Five Towns, here we come!

Dear Member,

The Overwhelming demand and the positive feedback have inspired us to forge ahead with subsequent events, we are pleased to invite you to an informative and insightful Educational Symposium & Support Event for Patients, Husbands, wives, parents, and caregivers of people suffering from Crohn's Disease and Ulcerative Colitis.

The event will take place Thursday, December 13, 2018, 7:30pm promptly, At The White Shul, 728 Empire Avenue, Far Rockaway, NY 11691. Parking available in adjacent parking lot.

Featuring:
Current Therapies in IBD
Dr. Arun Swaminath, M.D.
Director, Inflammatory Bowel Disease Program, Division of Gastroenterology Hepatology and Nutrition, Lenox Hill Hospital, Northwell Health
*
Pediatric IBD, Growing and developing:
Dr. Tuvia A. Marciano, D.O.
Chief of Pediatric Endoscopy, Director of Pediatric Inflammatory Bowel Disease, Vice Chairman, Institutional Review Board, Division of Pediatric Gastroenterology and Hepatology, NYU Winthrop University Hospital, Assistant Professor of Pediatrics, Stony Brook School of Medicine
*
Hidden heroism: 
How life changes when you or your loved one has IBD
Dr. Norman Blumenthal, PHD
Licensed Psychologist, Zachter Family Chair in Trauma and Crisis Counseling, Director, OHEL Miriam Center for Trauma, Bereavement and Crisis Response, OHEL Children's Home and Family Services
*
Followed by a Q&A Session.
Feel free to submit your questions by emailing us in advance, as we will only be able to accept minimal questions at the event.

***
For more information or any help feel free to contact us,
at 718-63-JCCSG (718-635-2274) or by email: Info@JCCSG.org

***
Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

We hope to see you all there!

Wednesday, November 14, 2018

Reminder: TONIGHT! Evening of Comedy in Baltimore!

Reminding you about TONIGHT's "Baltimore Evening of Comedy" Starring famous Comedian and Actor, Mendy Pellin

Wednesday, November 14, 2018, at 8:00 pm, at the home of Judy (Bregin) Gross, 3415 Bancroft Rd, Baltimore, MD 21215

Feel free to contact us with any questions or suggestions at Baltimore@JCCSG.org, or call us at 410-989-2005. 

Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

We hope to see you all there!


Sunday, October 28, 2018

Baltimore Evening of Comedy!

We are so excited to announce our Baltimore

"Evening of Comedy"
starring Mendy Pellin, famous Comedian and Actor! 

It will take place Wednesday, November 14, 2018, at 8:00 pm, at the home of Judy (Bregin) Gross, 3415 Bancroft Rd, Baltimore, MD 21215

Feel free to contact us with any questions or suggestions at Baltimore@JCCSG.org, or call us at 410-989-2005. 

Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

We hope to see you all there!

Sponsorship still available!

Friday, October 26, 2018

We are Hiring! Director of Developments


We are looking to add an associate to our team.

We are currently looking for a Director of Developments.

This position entails implementing a marketing strategy, spreading awareness of the organization and its cause, engendering community and volunteer participation, networking and communications, planning and organizing annual Fundraiser and other events and performing related duties.

Requirements:
  • Ability to work with a wide range of individuals.
  • Ability to multitask and meet deadlines.
  • Experience in related work.
  • Excellent oral and written communication skills.
  • Highly aggressive, Motivated and enthusiastic. 
  • Marketing, Branding and Advertisement knowledge.
  • Professional and personable manner.

Great potentials for the right candidate!

If you're interested or know anyone that might be, please email us at Info@JCCSG.org

(ps. Feel free to forward this...)

Monday, September 17, 2018

Yom Kippur info. A Git Gebencht Yur! Have an Easy fast!

We at עול"ם - The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family again, a good and sweet, and prosperous year. A year filled with Good health, well-being, happiness, success, Nachas, Parnasah and all you need. May we all be inscribed and sealed in the Book of Life.

As a reminder, please discuss with your Rabbe/Rav/Dayan ANDDoctor regarding your fasting, taking your medications, and/or about taking IV (Intravenous) fluids.

***

After we were asked by a lot of our members, we're sending a list of IV Center's provided by our heroic Chevra Hatzolah

The providers where you should call to arrange are asking you to call early enough so they should have the Fluids and it should not take that long for them! Remember, they are volunteers! 

Williamsburg:
On Yom Kippur (IV Center):
For more info please call Chevra Hatzalah’s special line: 718-534-5050 Ext. 0

*
Boro Park:
On Yom Kippur (IV Center):
  • Bobov Shul, 1533 48th St. - from 8:00am to 7:00pm
  • Belz Shul, 1321 43rd St. - from 8:00am to 7:00pm
  • Statcare, 1270 51th St. - from 8:00am to 7:00pm
  • Brizdovitz Shul, 1721 58th St. - from 8:00am to 7:00pm
For house calls (Only if necessary) or for more info please call Yachad D’Bobov Bikur Cholim: 718-851-2500

*
New Square:
  • Please call: 845-659-5886 to arrange it.

*
Kiryas Yoel, Monroe:
  • Please call: 845-537-0014 to arrange it.

*
Lakewood:
  • Please call the Lev Rochel Bikur Cholim of Lakewood, 732-905-3020 to arrange it.

*
Montreal:
  • Please call Refuah V'Chesed, 514-357-2167 Ext. #8.

*

REMEMBER: The same Torah which commands us to fast on Yom Kippur tells us that "V’Nishmartem M'od L’Nafshotaichem" - "Take care of your health/guarding our health" is far more important.

Again, you need a prescription in order to get the IV, no exceptions! So please make sure to have it!

Have an easy fast!!! גמר חתימה טובה

***

If you have a Medical emergency, you call us anytime, 24/7/365, even during Shabbos/Yom-Tov, 718-635-2274

Thursday, September 6, 2018

L'Shana Tova - לשנה טובה

 

At this time of year, we at עול"ם ~ The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family a happy and prosperous year; It shall be a year of Nachas and Parnasah, and of course a Healthy year...

As we look back upon the year past, we are proud that we have made some significant accomplishments this year:

First of all... We played the key role in passing the Crohn's & Colitis Fairness Act - NY State Restroom Access Act, and got it signed by the governor, our Advocacy was proudly praised by elected legislators, especially by Senator Simcha Felder, and we are finalizing the printing of the cards, soon to be announced how and where you can get it!

We provided Medical referrals, As expediting wait time for faster appointments, and easier access to top medical care for hundreds of people who reached out to us, And saved lots of money to them. While connecting with more doctors and hospitals throughout New York, New Jersey, Philadelphia and Maryland.

We gave Support, as visiting in the hospital, while working with the Medical professionals to open lines of dialogues between patients and physicians, to promote better adherence to medications and other treatments. To demystify the diseases & surgical options.
And Provided post-surgical respite services, to go away and rest up!

We supplied Information for over a thousand people and their families, B"H navigated Shidduhim, formulating and sharing the correct medical information to all parties involved to help alleviate concerns. מזל טוב to those who got engaged!

We were able to spread awareness while giving interviews for the Bina and Wellspring Magazines.

More education with more events and our yearly Ladies support group gathering, which featured An Integrative Approach in IBD and Shining through your inner core.

In addition to the continuous efforts in research in better understanding IBD and hopefully a Road to prevention.

Last but not least… our outstanding Women’s Retreat! Where the participants got to leave their illness at the door and reconnect to their power for 3 days! They danced, celebrated, and Cried and Laughed together. They walked out with a breath of fresh air; ready to conquer whatever comes about with the new filled energy and self-awareness they received.

At this opportunity, we would like to express our deep appreciation for your ongoing support of our mission. Especially those who showed that they #Care, answered our call and donated campaign. A big shout out to the individuals who helped us raise money and had their own pages! It is only with your continuous dedication that we are able to improve the quality of life for the people affected by Crohn's and Colitis and their families.

!כתיבה וחתימה טובה! שנה טובה ומבורכת

Thursday, June 7, 2018

You can't join full 3 days? We listened!

We listened!


To those of you who wanted to join our fabulous retreat program, but can't make it for the full three days.

We put together a program for Monday, June 11th to give you all an opportunity to join us in on the fun! 

You don’t have to miss out!

Join us for an evening of friendship, fun, and support!
  • 5:00-6:00 - Supper (Specialty diet food available) 
  • 6:00-7:30 - Special exciting program
  • 7:30-10:30 - Dance Party with Shimi Adar!!

To RSVP: call 347-829-JCCS - 347-829-5227 or email Support@JCCSG.org

Ps. Inquire about our private ostomy Support group


Tuesday, May 15, 2018

TONIGHT in Lakewood, NJ

We -in conjunction with the Lev Rochel Bikur Cholim of Lakewood- are looking forward to seeing you TONIGHT at the informative and insightful Education Symposium & Support Event for Patients, Husbands, wives, parents, and caregivers of people suffering from Crohn's Disease and Ulcerative Colitis.


The event will take place TONIGHT at 7:30pm promptly, At the headquarters of the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.

***
For more information or any help feel free to contact us, at 732.79.JCCSG (732-795-2274) or Lakewood@JCCSG.org
Or the Lev Rochel Bikur Cholim of Lakewood at 732-905-3020, Ext. 116 or IBDSupport@LRBCOL.org

***



Help us spread the word. Should you know someone who might benefit, please forward this email, they might not be on our mailing list…


Thursday, May 3, 2018

Next Event in Lakewood

Dear Member,

The Overwhelming demand and the positive feedback has inspired us to forge ahead with subsequent events, We -in conjunction with the Lev Rochel Bikur Cholim of Lakewood- are pleased to invite you to an informative and insightful Education Symposium & Support Event for Patients, Husbands, wives, parents, and caregivers of people suffering from Crohn's Disease and Ulcerative Colitis.

The event will take place Tuesday, פרשת במדבר, May 15, 2018, 7:30pm promptly, At the headquarters of the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.


Featuring:
Navigating Shidduchim and IBD
Introductory Words By
Rabbi Simcha Bunim Cohen Shlita
Rav K’hal Ateres Yeshaya, Lakewood
*
IBD & Shidduchim: Why Hide it?
Living a Productive Life with IBD
Dr. Simon Lichtiger, MD
Professor of Gastroenterology, Director of the Inflammatory Bowel Disease (IBD) Program; 
Columbia University Medicine Center
*
Surgical Treatment of IBD:
When it’s Needed & What are the Options
Dr. Ravi Kiran, MD
Professor of Surgery (Epidemiology); NewYork-Presbyterian/Columbia University Medical Center and Mailman School of Public Health, Director, Center for Innovation and Outcomes Research, Chief and Program Director, Division of Colorectal Surgery
*
Followed by a Q&A Session. Feel free to submit your questions

***
For more information, or any help feel free to contact us,
at 732.79.JCCSG (732-795-2274) 
or Lakewood@JCCSG.org
Or the Lev Rochel Bikur Cholim of Lakewood 
at 732-905-3020, Ext. 116 or IBDSupport@LRBCOL.org

***
Help us spread the word. Should you know someone who might benefit, please forward this email, they might not be on our mailing list…



Wednesday, May 2, 2018

Teleconference Recording

Listen to the recording of our previous Conference call with:

Rivka Malka Perlman, Program Director,
Fally Klein, Event Coach,
and
Esty Sinay, Event Coordinator

Call: 712-770-4772
Enter Access Code: 228881#
Then press # for latest recording

Or click here to listen online

Join us for an experience of community, growth and healing, 
this June 10-12. Slots are filling up quickly! Save your slot now! 
Sign up HERE
It’s only $399.00, Which includes 3 days and 2 nights of accommodations, including food and supplies.

Wednesday, April 25, 2018

Retreat Update: Dance with SHIMI ADAR! - Live Q&A with Rivka Malka

Excited to announce our addition to the already great program!

Dance Into The Sunshine: with SHIMI ADAR!

***
Hear more about the retreat!
LIVE Q&A TELECONFERENCE 
with Rivka Malka Perlman
TUESDAY, MAY 1, 9:00 PM

Call: 712-770-4139
Enter Access Code: 228881#

To join the Retreat, Sign up HERE 


To make this retreat available to benefit as many people possible, we took upon ourselves to cover most of the expenses, and charging you way below the cost, it’s only $399.00, Which includes 3 days and 2 nights of accommodations, including food and supplies.

Friday, April 20, 2018

Crohn's & Colitis Fairness Act - Restroom Access Act is a LAW

Restroom access act in New York State is finally law!
On Wednesday Governor Andrew Cuomo signed into law the Crohn's and Colitis Fairness Act. 
 
This could not have happened without the incredible support we got from you - you all have had a profound impact on the lives of the nearly 105,000 IBD patients in New York!

Please stay tuned for updates and further details.

Monday, April 16, 2018

Mazel Tov Mrs. Sobol

מזל טוב

We would like to wish a hearty Mazel Tov to our dear friends Dr. Srayah & Mrs. Shana Sobol, JCCSG Baltimore Division Coordinator, upon the wedding of their daughter.

Mrs. Sobol is someone who has put her heart and soul into assisting Crohn's and Colitis sufferers, and so skillfully conducts the support group gatherings in Baltimore, Maryland, with much tact.

May they have much Nachas from this couple and from their whole family along with health, wealth and abundant happiness. Let her be Zoche to fulfill her mission of improving the quality of life for people affected by Crohn's and Colitis and for their families with success and Brucha at all times.


Wishing you
Yoely Drummer
Founder & Executive Director
In the name of the entire Board and all our members

Thursday, March 29, 2018

Updated Pesach Notification

הערט א נייע אינפארמעטיווע און וויכטיגע אינטערוויו מיט אינפארמאציע און אנווייזונגען וואס איז ספעציעל נוגע פאר קראונס און קלייטיס פאציענטן אום פסח
אויפן קול מבשר האטליין, 212-444-1100
דאן דריקט 1-1-4
אויב הערט איר עס נאכנישט (ביי די קנעפל ווערט כסדר צוגעלייגט פרישע אינטערוויו'ס..) דאן דריקט די # קנעפל, ביז איר קומט אן צו די אינטערוויו. עס הייבט זיך אן "ערבי פסחים תשע"ח, פאר די אלע וואס ליידן פון קראונס...",י
די שיעור איז איבערגעגעבן געווארן דורך
הרב רבי אלעזר דוד פאללמאן שליט"א
מראשי חברי הנהלת ארגונינו עול"ם 

פאר די פאריעריגע אינטערוויו דריקט 3-1 פון די מעין מעניו און דערנאך 1558#
וזאת למודעה: אלעס וואס עס ווערט אויסגעשמועסט אויף די אינטערוויו'ס, איזאויסגעארבייט געווארן אדורך גדולי מורי הוראה, בעלי נסיון... וד"ל 

פאר סיי וואספארא פראבלעם איר האט אום יו"ט און איבערן גאנץ יאר קענט איר אונז רופן אויף
718-635-2274

As the Yom Tov Pesach is approaching, we would like to Invite you to listen to a NEW important and informative interview in Yiddish, discussing the Halachas regarding Arba Kosos, Shiurim of Matzah and Maror, and more.
You can listen to it on the Kol Mevaser Hotline, at 212-444-1100, press 1-1-4.
Please note: that section is being updated a lot, so if you don't hear the interview with Rabbi Eluzer Duvid Follman, JCCSG Board Member, press # as many times needed until you hear the interview...

For the last year Shiur, press 3-1 on the main menu, and then 1558#

For any issue or emergency feel free to call us anytime, even during Shabbos/Yom-Tov, 718-635-2274.

חג כשר ושמח!!!י

We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!

Sunday, March 25, 2018

Pesach Notification

וואס טרינק איך פאר די ארבע כוסות? מעג איך עסן מצה ומרור?י

הערט א גאר אינפארמעטיווע און וויכטיגע אינטערוויו מיט אינפארמאציע און אנווייזונגן וואס איז ספעציעל נוגע פאר קראונס און קלייטיס פאציענטן אום פסח
אויף קול מבשר, 212-444-1100 
און דריקט 3-1 דערנאך 1558#
וזאת למודעה: אלעס וואס עס ווערט אויסגעשמועסט אויפן אינטערוויו, איז אויסגעארבייט געווארן אדורך גדולי מורי הוראה 

פאר סיי וואספארא פראבלעם איר האט אום יו"ט און איבערן גאנץ יאר קענט איר אונז רופן אויף 718-635-2274

As the Yom Tov Pesach is approaching, we would like to Invite you to listen to an important and informative interview in Yiddish, discussing the Halachas regarding Arba Kosos, Shiurimof Matzah and Maror, and more.
You can listen to it on the Kol Mevaser Hotline, at 212-444-1100, press 3-1, and then 1558#

Pesach is a favorite holiday, we all gather with our families and discuss the miracle of our redemption and remember the freedom granted to us by Hashem. In that remembrance, we have the Seder, Matzah, and Arba Kosos. To most, these appear to be fun parts of the holiday to approach joyously. But to a Crohn’s or Colitis patient, it can be slightly nerve inducing as the least digestive friendly holiday approaches.

First, it is important to remember that many medications interact with alcohol. Be wary of this and ask your physician before consuming your Arba Kosos. remember, if you are taking Antibiotics (As Flagyl – Metronidazol and same goes to a lot of other) you are not allowed to drink any alcohol! All other IBD patients should please double check with your doctor if the effectiveness of your medication will not be decreased or render them useless while mixing them with alcohol

Simply skipping medication is not the answer to the very real problem! You should exercise extreme caution and consult with your doctor and Rabbi/Rav before deciding not to take a medication on Pesach As important as one treats the laws of Kashrus, one is also obligated to treat the Mitzvah of "V'Nishmartem M'Od L'Nafshotaichem" - "Take care of your health". Therefore, under no circumstances should an individual forego taking a prescribed medication of Pesach (and during the year...) without first consulting one's physician and Rav for a careful analysis of the situation.

Second, Matzah is notoriously harsh on the stomach, and in order to stay healthy and safe, you have to take precautions. Speak with your physician and your Rav about how you should approach eating matzah this coming Pesach, all information on the above-mentioned Yiddish Interview has been discussed and guided by Rabbanim.

Please call your doctor if you have any issues, if you have a problem reaching your doctor, feel free to contact us anytime, we will try our best to get you through. Do not hesitate to call us anytime.

For any issue or emergency feel free to call us anytime, even during Shabbos/Yom-Tov, 718-635-2274.

Please forward this email to all patients and their families who may benefit.

Big Thanks to Abigail Winokur for the help!

We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!