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Tuesday, May 16, 2017

Reminder: TONIGHT in Lakewood

Dear Member,

This is just a friendly reminder to TONIGHT'S Symposium taking place At the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.

Program to start 7:45 pm Sharp!

Patients, Husbands, wives, parents, caregivers and other Non-affected family members are invited and very welcome to attend. Familial support and awareness are important to those afflicted with this disease.

Your presence will greatly enhance the event. Come and be inspired. And please try to be on time so we should be able to start and end on time.

Help us spread the word. Should you know someone who might benefit, please forward this email, they might not be on our mailing list…


Wednesday, May 10, 2017

Crohn's & Colitis Event, May 16, in Lakewood NJ

Dear Member,

The Overwhelming demand and the positive feedback has inspired us to forge ahead with subsequent events, We -in conjunction with the Lev Rochel Bikur Cholim of Lakewood- are pleased to invite you to a very informative and insightful Education Symposium & Support Event for Patients, Husbands, wives, parents and caregivers of people suffering from Crohn's Disease and Ulcerative Colitis.

The event will take place next week Tuesday, פרשת בהר-בחוקותי, May 16, 2017, 7:30pm promptly, At the headquarters of the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.

Featuring:
  • Dr. Razvan Arsenescu, MD, PhD
    Chief Atlantic Digestive Health Institute, Director Atlantic Inflammatory Bowel Disease Center

  • Dr. Joel R. Rosh, MD, FAAP, FACG, AGAF,
    Director, Pediatric Gastroenterology, Vice Chairman, Clinical Development and Research Affairs, Goryeb Children's Hospital/Atlantic Health
    Professor of Pediatrics, Icahn School of Medicine at
    Mount Sinai

  • Introductory words by:
    Dr. Daniel Lapidus
    Pediatric Affiliates

For more information, or any help feel free to contact us, at 718-63-JCCSG
(718-635-2274) or by email: Info@JCCSG.org.
Or the Lev Rochel Bikur Cholim of Lakewood at
732-905-3020, Ext. 116

Help us spread the word. Should you know someone who might benefit, please forward this, they might not be on our mailing list…

Tuesday, May 2, 2017

Re: Next Event in Baltimore

Dear member,

Enlightening update regarding the upcoming “JCCSG Support Event", which will take place on Monday, פרשת אמור, May 8, 2017. At the home of Mr. & Mrs. Chanoch & Ilana Hoenlein, 6227 Berkeley Ave., Baltimore, MD 21209. Program to start 8:15 pm Sharp!

The Event is for patients, wives, husbands, parents and caregivers of people affected by Crohn's Disease and Ulcerative Colitis.

Divrei Chizuk by Rabbi Shmuel Silber, Rav of Suburban Orthodox, Congregation Toras Chaim in Baltimore, Founder and Dean of the Institute for Jewish Continuity.

You can share with us your comments and suggestions by calling Mrs. Shana Sobol, JCCSG Baltimore Chapter Coordinator, at 410-598-2327, or by sending an email to Baltimore@JCCSG.org. We would be delighted to hear from you.

Help us spread the word. Should you know someone who might benefit, please send them this information, they might not be on our mailing list…

Sunday, April 30, 2017

Next Event in Baltimore

In response to the overwhelming demand from the people of Baltimore, we have been inspired to forge ahead. We are so proud to now announce our next “Education & Support Event”!

This event will be held in Baltimore, Maryland, on Monday, May 8th, 2017

Stay Tuned for our future updates and feel free to contact us with all your concerns and comments by phone or by sending an email to Baltimore@JCCSG.org. We would be delighted to hear from you.

Help us spread the word. Should you know someone who might benefit, please send them this information, they might not be on our mailing list…

Tuesday, April 25, 2017

A loss to our IBD community: ​Dr. Adrian Greenstein

It is with great sadness that we announce the passing of our beloved friend, Dr. Adrian Greenstein, MD, FACS, FRCS.

The pain is still raw, and the loss so profound, Dr. Greenstein was a world-renowned IBD surgeon who was a Professor of Surgery at Icahn School of Medicine at Mount Sinai since 1968, Through most of his long career, Dr. Greenstein maintained one of the busiest inflammatory bowel disease (IBD) surgical practices in New York City.

Dr. Greenstein contributed more than 150 publications to the literature on surgical approaches, the majority of which have been on inflammatory bowel disease. More importantly, we will always remember Dr. Greenstein’s incredible surgical skill in the most complex cases of IBD, his patience and compassion as a clinician, and his ever-gentle manner. he was a strong advocate for our organization JCCSG, being a sounding board of advice, guidance, and affection. His patients and colleagues adored him, as did the generations of residents and medical students that were fortunate enough to learn from him.

As his Son, our dear friend, Dr. Alexander J. Greenstein, Associate Professor of Surgery, Mount Sinai Hospital, once said:

“My father pretty much made it possible for everything. I owe him a lot. It’s been terrific as a kid, he was a wonderful father and now as a partner, a wonderful mentor. I’m sure I could have made it, but it has certainly been amazing to work with him, help him and have him lead the way. We’ve complimented each other really well, and he’s brought out the best in me.”
You can read about their teamwork, in the NY Daily News, in 2012…
 


We send our heartfelt condolences to Dr. Greenstein’s family. Especially to his son, our dear friend, Dr. Alexander, May the family be comforted among the mourners of Zion and Jerusalem.

Shiva will be observed till Thursday, 4/27, from 5:00pm till 7:00pm, at 73 Windsor Road, Tenafly, NJ, 07670

We and his many patients over the last 5 decades will miss him greatly. He will always be remembered!


Yoely Drummer
Founder & Executive Director 

And Your friends at עול"ם - JCCSG Inc.

Wednesday, April 5, 2017

Pesach Notifications

Dear Friends,

וואס טרינק איך פאר די ד' כוסות? מעג איך עסן מצה ומרור?

הערט א גאר אינפארמעטיווע און וויכטיגע אינטערוויו מיט אינפארמאציע און אנווייזונגן וואס איז ספעציעל נוגע פאר Crohn's און Colitis פאציענטן אום פסח

אויף קול מבשר, 212-444-1100 און דריקט 3-1-1 דערנאך 1558#
וזאת למודעה: אלעס וואס עס ווערט אויסגעשמועסט אויפן אינטערוויו, איז אויסגעארבייט געווארן אדורך גדולי מורי הוראה

 פאר סיי וואספארא פראבלעם איר האט אום יו"ט און איבערן גאנץ יאר קענט איר אונז רופן אויף 718-635-2274


As the Yom Tov Pesach is approaching, we would like to Invite you to listen to an important and informative interview in
​​
 Yiddish
, discussing the Halachasregarding Arba Kosos, Shiurim of Matzah and Maror, and more.

You can listen to it on the Kol Mevaser Hotline, at 212-444-1100, press 3-1-1, and then 1558#

Pesach is a favorite holiday, we all gather with our families and discuss the miracle of our redemption and remember the freedom granted to us by Hashem. In that remembrance, we have the Seder, Matzah, and Arba Kosos. To most, these appear to be fun parts of the holiday to approach joyously. But to a Crohn’s or Colitis patient, it can be slightly nerve inducing as the least digestive friendly holiday approaches.

First, it is important to remember that many medications interact with alcohol. Be wary of this and ask your physician before consuming your Arba Kosos. remember, if you are taking Antibiotics (As Flagyl – Metronidazol and same goes to a lot of other) you are not allowed to drink any alcohol!
All other IBD patients should please double check with your doctor if the effectiveness of your medication will not be decreased or render them useless while mixing them with alcohol.

Simply skipping medication is not the answer to the very real problem! You should exercise extreme caution and consult with your doctor and Rabbi/Rav before deciding not to take a medication on Pesach. As important as one treats the laws of Kashrus, one is also obligated to treat the Mitzva of "V'Nishmartem M'Od L'Nafshotaichem" - "Take care of your health". Therefore, under no circumstances should an individual forego taking a prescribed medication of Pesach (and during the year...) without first consulting one's physician and Rav for a careful analysis of the situation.

Second, Matzah is notoriously harsh on the stomach, and in order to stay healthy and safe you have to take precautions. Speak with your physician and your Rav about how you should approach eating matzah this coming Pesach, all information on the above-mentioned Yiddish Interview has been discussed and guided by Rabbanim.

Please call your doctor if you have any issues, if you have a problem reaching your doctor, feel free to contact us anytime, we will try our best to get you through. Do not hesitate to call us anytime.

Please forward this email to all patients and their families who may benefit.

Big Thanks to Abigail Winokur for the help!

We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!

Thursday, March 9, 2017

PURIM ALERT!!!

PURIM ALERT!!!

We're sending this email early enough... it's a friendly reminder about the danger of mixing certain medications with alcohol. In some cases, alcohol interactions may decrease the effectiveness of medications or render them useless. In other cases, alcohol interactions may make drugs harmful or even toxic to your body, even in small amounts!

We witnessed many patients taking Flagyl - Metronidazel and they drank alcohol having very unpleasant and some even life-threatening side effects, Therefore if you're taking Flagyl - Metronidazel, do NOT drink! (We pointed out one Antibiotic, but there are much more other medications with the same danger).

In any case, each and every Crohn's and Colitis patient should double check with their doctor if drinking alcohol while taking your medication is safe, and if you're allowed to drink even a drop!


Please be responsible! Do it for yourself and for your family.



A Freilichen Purim! And Tumid B'Simcha!

Monday, January 23, 2017

Audio of the CrownHeights Event

Dear member,

Sorry for the delay... Attached is a link to download the recording of the event in Crownheights. Or you can pick up a CD at all ‘קרן שמואל ישעי - Keren Shmiel Shaya kiosk and Shul locations. For the low cost of $5.00.



​​
  1. Event Moderator: Comedian Mendy Pellin
  2. Optimizing current therapies for IBD: Dr. David Hudesman, Director of IBD, Tisch NYU Hospital.
  3. Mendy Pellin
  4. Upcoming treatments in the Pipeline: Dr. Simon Lichtiger, Director of IBD, Columbia Hospital.
  5. Mendy Pellin
  6. Diets and Natural supplements in IBD: Dr. Garrett Lawlor, Associate Director of IBD, Columbia Hospital
  7. Dr. Eli Rosen, Crown-Heights physician
  8. Personal Story: Mendy Pellin
  9. Surgical treatment of IBD: when its needed & what are the options: Dr. Feza Remzi, Director of IBD, NYU Langone Medical Center.
  10. Pediatric IBD: Developing and Growth: Dr. Nancy Pittman, Pediatric, Gastroenterology, Mount Sinai Hospital
  11. Question and Answer session and a five doctors panel

Tuesday, January 3, 2017

Ladies Support Group Gathering

We are doing it again!

An uplifting and inspiring experience; Join us at our “Ladies Support Group” gathering, an afternoon of Awareness, Unity and Joy.

"Reclaim Your Womanhood" workshop given by the inimitable Rivka Malka Perlman.

Experience life again; this time with you in the driver's seat!

Save the date!
Sunday, January 22, 2017, 12:0pm.
Machon High School (2nd floor)
1683 42nd St., Brooklyn, N.Y. 11204

Program begins promptly - Light/SCD diet refreshments will be served.

RSVP required

Email: Support@jccsg.org
Text: 917-676-6358

The gathering is specifically for women with Crohn’s Disease or Ulcerative Colitis.


***

Reminder: Please help us out so we'll be able to help you better. Any donation, no matter how small, will go a long way in making it all possible.

Please donate here: https://thechesedfund.com/cause/help-jccsg-to-help-others

You can also send us a Chase QuickPay to: Info@JCCSG.org
Or call/email us with your Credit Card info

We are a 501(c)3 organization. All your donations are tax deductible.

Sunday, December 4, 2016

Help JCCSG help others

Dear member,

JCCSG has been founded almost 6 years ago to help those struggling with Crohn's Disease and Ulcerative Colitis. Over the past few years, we have helped people alleviate their struggle to survive the difficulties of these diseases. We have provided general information, assisted with medical referrals, launched educational symposiums and support group events.

In the past few months, we have spent a lot of resources to improve and strengthen connections with doctors to be able to expedite appointments, to provide support for those struggling with the disease and their families, and to arrange support gatherings. We also have many great ideas in the pipeline for the future.

We never asked our beneficiaries for any fee, and intend to continue to do so for as long as we can. However, we need financing to be able to launch new projects and keep up with the old ones.

Here we are with a plea to all of you: please help us out so we'll be able to help you better. Any donation, no matter how small, will go a long way in making it all possible.


You can donate here: https://thechesedfund.com/cause/help-jccsg-to-help-others​​


You can also send us a Chase QuickPay to: Info@JCCSG.org

Or you can send us a check, payable to JCCSG Inc., to:
JCCSG Inc.
95 Skillman St. #5C
Brooklyn NY 11205

We are a 501(c)3 organization. All your donations are tax deductible.

We appreciate your help and look forward to your generous contribution.

Please forward this email to your family and friends. And post it on social media.


All the best!


​Yoely Drummer

Founder & Executive Director

And Your friends at עול"ם - JCCSG Inc.
עזרה וחיזוק לחולי מעיים
Jewish Crohn's & Colitis Support Group

Tuesday, November 29, 2016

TONIGHT at 7:15pm in Crown-Heights

We look forward to welcome you TONIGHT at 7:15 at the Lubavitch Yeshiva Hall, 570 Crown St. Brooklyn NY 11213. No RSVP needed. The lectures are set to begin in a timely fashion, so please be punctual.

There will NOT be a Live online Video hookup, nor Teleconference!

Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit of it… Pass the invitation or send us their email address to be added to our mailing list.

If you are coming from Williamsburg or Boro Park or anywhere else and you might have place for someone else, please contact us. Thanks!

Wednesday, November 23, 2016

The Ad of our Crown-Heights Event

Hi,

Please help us spread the word about our upcoming Event, ​​Co-Sponsored by "Sunshine Pharmacy”

​​Attached is our Ad we publicized. Please forward it to people you know that might benefit from it, and if possible please hang this ad by your Doctor’s Office (ask them before if it’s a problem...) or wherever you feel its right. (If you need it in PDF format, please contact us).

​​​



​Sunshine Pharmacy is located at 411 Kingston Ave, Brooklyn, NY, 11225, 718-773-2020
Visit www.sunshinech.com for more info about our great sponsor!

Thursday, November 10, 2016

Comedian Mendy Pellin wants to talk with you about Crohn's Disease & Ulcerative Colitis

Comedian Mendy Pellin will be waiting for you at the Crown-Heights symposium, on Tuesday, November 29th, at the Lubavitch Yeshiva Hall, 570 Crown St. Brooklyn NY 11213.

Please share it with your friends, and on Social Media.

If you like to be a co-sponsor, or you know of anyone that would, please help us, and contact us

This event is not RSVP, but you can still register at
http://online.ccfa.org/BrooklynJCCSG2016
video

Monday, October 10, 2016

A Git Gebencht Yur! Yom Kipur info., Have an Easy fast!

We at עול"ם - The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family again, a good and sweet, happy and prosperous year. A year of Nachas and Parnasah and all you need. And of course a Healthy year. May we all be inscribed and sealed in the Book of Life.

As a reminder, please discuss with your Rabbe/Rav/Dayan AND Doctor regarding your fasting, taking your medications, and/or about taking IV (Intravenous) fluids.

*

After we were asked by a lot of our members, we're sending a list of IV Center's provided by our heroic Chevra Hatzolah

YOU WILL NEED A PRESCRIPTION!!!

Williamsburg:
Erev Yom Kipur (Starting the IV line):
  • ODA, 14 Heyward St.
  • Quality Health Center, 432 Bedford Ave.
On Yom Kipur (IV Center):
  • ODA, 14 Heyward St. - from 10:00am till 4:00pm
  • Quality Health Center, 432 Bedford Ave. - from 10:00am till 4:00pm
For more info please call Chevra Hatzalah’s special line: 718-534-5050 Ext. 0

Boro Park:
Erev Yom Kipur (Starting the IV line):
  • Bobov Shul, 1533 48th St. - from 1:00pm to 5:00pm
On Yom Kipur (IV Center):
  • Bobov Shul, 1533 48th St. - from 8:00am to 7:00pm
  • Belz Shul, 1321 43rd St. - from 8:00am to 7:00pm
  • Statcare, 1270 51th St. - from 8:00am to 7:00pm
  • Brizdovitz Shul, 1721 58th St. - from 8:00am to 7:00pm
For house calls (Only if necessary) or for more info please call Yachad D’Bobov Bikur Cholim: 718-851-2500

Rockland County:
Erev Yom Kipur (Starting the IV line):
  • At the Hatzoloh Garage, 19 Grove Street, corner of Saddle River Road - from 12:00pm to 2:00pm.
On Yom Kipur:
  • A nurse or paramedic will come to your home on Yom Kippur morning to attach the IV bag.
Patients must pre-register by calling 347-743-4747.
Fee $25.00 to cover expenses.

New Square: Kiryas Yoel, Monroe: Lakewood:
  • Please call Lev Rochel Bikur Cholim of Lakewood, 732-905-3020 to arrange it.
Montreal:
REMEMBER: The same Torah which commands us to fast on Yom Kippur tells us that "V’Nishmartem M'od L’Nafshotaichem" - "Take care of your health/guarding our health" is far more important.

Again, you need a prescription in order to get the IV, no exceptions! So please make sure to have it!

Have an easy fast!!!

Sunday, October 2, 2016

L'Shana Tova!

At this time of year, we at עול"ם ~ The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family a happy and prosperous year; It shall be a year of Nachas andParnasah, and of course a Healthy year.

As we look back upon the year past, we are happy to let you know that we have made some significant accomplishments this year, spreading our awareness, education and support mission in Lakewood NJ, and we’re on the way to Crown Heights, while connecting with more doctors and hospitals throughout New York and New Jersey. In addition to the continuous efforts in research in better understanding IBD and hopefully a Road to prevention.

At this opportunity we would like to express our deep appreciation for your ongoing support of our mission. It is only with your continuous dedication that we are able to improve the quality of life for the people affected by Crohn's and Colitis and their families.

A Kesiva V'Chasima Tova!
​כתיבה וחתימה טובה! שנה טובה ומבורכת!