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Thursday, May 28, 2015

NY State Restroom Access Act - The Ally's Law

WE NEED YOUR HELP to pass the NY State Restroom Access Act, a bill that will allow people with qualifiable medical conditions, like inflammatory bowel disease (IBD), access to employee restrooms in businesses.

Two years ago, we asked you to join our campaign about the “The Restroom Access Act” is also known as "Ally's Law," we BH got a lot of people involved, but sadly at the end it failed again due to some wording issues.

A few month ago, on January 7, 2015, bill
A277-2015 was introduced again by Assemblywomen Amy Paulin (88th District), an act to amend the public health law, in relation to enacting the Crohn's and Colitis fairness act, this “The Restroom Access Act” is also known as "Ally's Law," so named for Ally Bain, a teen that was spurred to action after she experienced an IBD-related accident. Ally was denied access to an employee-only restroom while shopping. Ally was instrumental in getting the first version of the Restroom Access.

The Restroom Access Act is a law passed in several states that requires retail establishments that do not have public restrooms to provide access to employee-only restrooms to patrons in need. This can include people who have inflammatory bowel disease (IBD), irritable bowel syndrome (IBS), pregnant women, and those who have other chronic conditions.

The Restroom Access Act has been passed in a total of fifteen states: Colorado, Connecticut, Illinois, Kentucky, Maine, Maryland, Massachusetts, Michigan, Minnesota, Ohio, Oregon, Tennessee, Texas, Wisconsin, and Washington. The act has been passed in these states largely as result of grassroots efforts. There is support for a federal version of the act, and several other states have similar laws currently in the works.

In Senate it was introduced as bill
S4918-2015 by Senator Kemp Hannon, chairman of the prestigious Senate committee on Health.

One of the easiest things to do to generate support for Bill A277/S4918 – The Crohn’s and Colitis Fairness Act – Restroom Access, is to send an email to your legislators.
It is very simple to do. First locate your Senator by going to this link
http://www.nysenate.gov/senators and your Assemblyperson by going to this link http://assembly.state.ny.us/mem/search/ and put in your street address. Once you identify your Senator and Assemblyperson click on their name and there will be a place that says "contact me". That will generate an email form or address and then all you have to do is insert the following type of wording:

Dear ______________

I am a voter/constituent in your district and I am asking for your support of Bill A277/S4918, which enacts the "Crohn's and Colitis Fairness Act" providing Restroom Access. This bill would allow people with medical conditions that require urgent restroom use--such as the inflammatory bowel diseases (IBD) Crohn’s disease and ulcerative colitis--to use an employee’s-only restroom when a public one is not available and it is safe for the business to do so.

In NY State there are more than 100,000 people with these debilitating diseases. I am sure you can imagine how it must feel to be denied access to a bathroom when you so desperately need one. This Bill is important to me because...
(I have IBD or am related to or friends with - whatever personal connection you wish to share).

Please support this bill and vote for it when it comes before you. If you need more information please feel free to contact the Jewish Crohn’s & Colitis Group (JCCSG) or visit http://jccsg.blogspot.com/2015/05/ny-state-restroom-access-act-allys-law.html

Thank you,

Your name


A simple thing like this from many of us can be what it takes to get the Bill passed. Let's blanket NY State with requests for support of this necessary Bill. Please let one of us know if you are able to do this and we will keep track of all the legislators reached.

If you think you can or know someone who can help us out achieving this, please contact us.



A277-2015 Page 1


A277-2015 Page 2
S4918-2015 Page 1
S4918-2015 Page 2
 

Thursday, May 14, 2015

Road To Prevention Event #1 * Thanks!!! What's Next...???

Dear Member,

We are grateful that you made the effort to attend Sunday’s event. It is only with your active participation that it was a resounding success. 


We received a lot of contact information sheets which is a wonderful start toward this important initiative.


We hope to host more events as well as continue our media campaign to bring attention to this program to interested parties. Stay tuned for the future notices regarding upcoming events in your area.

If you are willing to participate in the study, please find the attached consent form. You can learn more about the study, and how you and your family can help. Please complete it and return to
roadtoprevention@mssm.edu or to roadtoprevention@JCCSG.org. For more info feel free to call 212-824-9078.

A special request to the People from Monsey, New Square and Kiryas Yoel - Monroe: We will arrange a local site to collect specimens to spare you the inconvenience of traveling to Mt Sinai. Please get back to us ASAP so that we may properly coordinate.


***

CD's and DVD’s will be sold in the future; please expect further details.


Please feel free to refer any Crohn's or Colitis sufferer who you think may benefit from our support.


***
Right to Left: Inga Peter, PhD. - Jeremiah Faith, PhD. - Dr. Jean-Frédéric Colombel, MD. - Dr. Joana Torres, MD. - Dr. Asher A. Kornbluth. MD, - Dr. Bruce E. Sands, MD. - Dr. Marla Dubinky, MD. - Dr. Keith Benkov, MD. - Dr. Judy H Cho, MD. - Dr. James F. Marion, MD. - Dr. Jose Carlos Clemente, MD. - Yoely Drummer, JCCSG Founder & Executive Director. - R' Eluzer Dovid Follman, JCCSG Vice President of Communications

In closing, we want to take a moment to express our gratitude to individuals who gave of their time and expertise-




Dr. James F. Marion
Dr. James F. Marion, MD, Professor of Practice of Medicine, Gastroenterology, ‎Icahn School of Medicine, Mount Sinai Hospital, for standing at our side at all times. Your skill and tact has added much to the sensitivity of the topic.

The extraordinary success of our program was due to our talented presenters:


Dr. Bruce E. Sands
Dr. Bruce E. Sands, MD, Chief, Henry D. Janowitz Division of Gastroenterology, ‎Icahn School of Medicine, Mount Sinai Hospital, 
Dr. Asher A. Kornbluth

Dr. Asher A. Kornbluth, MD, Clinical Professor of Medicine, Gastroenterology, Mount Sinai Hospital. And Founder and annual course director of the Mount Sinai IBD Consultants Course

Inga Peter, PhD


Inga Peter, PhD, Associate Professor, Department of Genetics and Genomic Sciences, Member, The Charles Bronfman Institute for Personalized Medicine‎, Icahn School of Medicine, Mount Sinai Hospital

Jeremiah Faith, PhD
Jeremiah Faith, PhD, Assistant Professor, Department of Genetics and Genomic Sciences, Assistant Professor, Medicine, Clinical Immunology‎, Icahn School of Medicine, Mount Sinai Hospital

Dr. Jean-Frédéric Colombel
Dr. Jean-Frédéric Colombel, MD, Co-director Susan and Leonard Feinstein IBD Center, Icahn School of Medicine, Mount Sinai Hospital

Dr. Keith Benkov, MD, Associate Professor Pediatrics, Gastroenterology, Icahn School of Medicine, Mount Sinai Hospital

Dr. Judy H Cho, MD, Professor Medicine, Gastroenterology and Professor Genetics and Genomic Sciences


Dr. Joana Torres, MD, Post-Doctoral Fellow Mount Sinai School of Medicine


Dr. Jose Carlos Clemente, MD, Assistant Professor Genetics and Genomic Sciences


Dr. Marla Dubinsky
Last but certainly not least, Dr. Marla Dubinsky, MD, Chief Pediatric Gastroenterology and Hepatology, Co-director Susan and Leonard Feinstein IBD Center, Icahn School of Medicine, Mount Sinai Hospital, who from the very first time we met, has coordinated and worked together with us, assisting us in our success.

An extra special thanks to two individuals who took upon themselves to liaison this special study with the subjects. They have been (and are) instrumental to the success of our endeavors:
Harav Rabbi Chaim Mayer Hager, JCCSG Administrator.
R' Eluzer Dovid Follman, JCCSG Vice President of Communications..


Thanks to Yossi Steinmetz of YES Studios and his wife for devoting their precious time. Yossi can be reached at
718-576-1769 - yestudios@gmail.com - www.yossisteinmetz.com.

We thank you again, our very dear members, for enhancing the event.

By navigating the "road to prevention" together we can save our future generations.


All the best!


Yoely Drummer

Founder & Executive Director
​On behalf of The Road To Prevention team at עול"ם - JCCSG Inc.
עזרה וחיזוק לחולי מעיים - Jewish Crohn's & Colitis Support Group

Friday, May 1, 2015

"ROAD TO PREVENTION!" Event, May 10, in Monsey *Update #3*

Dear member,

Here we are with updated details regarding the upcoming “ROAD TO PREVENTION” event in partnership and sponsored by Mount Sinai Hospital.

This "Ladies Only" education program will take place on Sunday, פרשת בהר-בחוקותי, May 10, 2015. At the new Vilchovitz Hall (former Yeshiva of Spring Valley, Boys School), 230 Maple Ave., Monsey, NY 10952.

  • ​​
    ​​
    ​​
    Welcome and Introduction:
    7:15pm Sharp!
  • Program Moderator:

​​
James F. Marion, MD, 
Professor of Practice of Medicine, Gastroenterology, ‎Icahn School of Medicine, Mount Sinai Hospital
  • Mount Sinai IBD center history: the house Dr. Crohn's built:
Bruce E. Sands, MD,
Chief, Henry D. Janowitz Division of Gastroenterology, ‎Icahn School of Medicine, Mount Sinai Hospital
  • The course of Crohn's disease and how it can behave:
Asher A. Kornbluth, MD,
Clinical Professor of Medicine, Gastroenterology, Mount Sinai Hospital
Founder and annual course director of the Mount Sinai IBD Consultants Course
  • Genetics of IBD in the Ashkenazi Jewish population:
Inga Peter, PhD,
Associate Professor, Department of Genetics and Genomic Sciences
Member, The Charles Bronfman Institute for Personalized Medicine‎, Icahn School of Medicine, Mount Sinai Hospital
  • How diet and our environment affect the bacteria inside our bodies:
Jeremiah Faith, PhD,
Assistant Professor, Department of Genetics and Genomic Sciences
Assistant Professor, Medicine, Clinical Immunology‎, Icahn School of Medicine, Mount Sinai Hospital
  • Why prevention of IBD is possible:
Jean-Frédéric Colombel, MD, 
Co-director Susan and Leonard Feinstein IBD Center, Icahn School of Medicine, Mount Sinai Hospital
  • How can you help?:
Marla Dubinsky, MD,
Chief Pediatric Gastroenterology and Hepatology,
Co-director Susan and Leonard Feinstein IBD Center, Icahn School of Medicine, Mount Sinai Hospital
  • ​​
    Followed by a question and answer, Eleven doctors panel, with the additional following professors in the field:
Keith Benkov, MD,  Associate Professor Pediatrics, Gastroenterology, Icahn School of Medicine, Mount Sinai Hospital
Judy H Cho, MD, Professor Medicine, Gastroenterology and Professor Genetics and Genomic Sciences
Joana Torres, MD, Post-Doctoral Fellow Mount Sinai School of Medicine
Jose Carlos Clemente, MD, Assistant Professor Genetics and Genomic Sciences

Please call us at 845-670-4522 or email us at
​​
RoadToPRevention@JCCSG.org
with your questions in advance as we will only be able to accept minimal questions at the event.


Again, we would like to take the opportunity to invite the non-effected family members of effected.
 It is highly regarded to have family members of IBD Sufferers participate in this study as a means of prevention. Please help us/yourself with letting your family know about it, and inviting them to join this symposium. By navigating the "road to prevention" together we can save our future generations.


We're working on providing transportation from Kiryas Yoel - Monroe, and New Square. Please call 845-670-4522 or email us to RSVP.


Help us spread the word. Should you know someone who might benefit and is not on our mailing list forward this email.

For any other comments and suggestions, please feel free to contact us anytime by phone at our designated number 845-670-4522 or email.

We would be delighted to hear from you. Your participation is much appreciated!