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Tuesday, September 19, 2017

Video of Tamar Feldman in Baltimore - L'Shana Tova! - Please help us!

Dear member,

Attached is the link to watch (on YouTube) the Lecture of Tamar Feldman, RDN CDE, discussing Inflammatory Bowel Disease and Healing Dietary Solutions, Delivered in Baltimore, MD on July 23.


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At this time of year, we at עול"ם ~ The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family a happy and prosperous year; It shall be a year of Nachas and Parnasah, and of course a Healthy year.

As we look back upon the year past, we are proud that we have made some significant accomplishments this year, We provided Medical referrals, Expedited appointments, for hundreds of people who reached out to us, We got huge discounts by specialists for the needy, we supplied information and support for over a thousand people and their families, we were able to spread our awareness, education and support mission in Crown Heights-Brooklyn NY, Baltimore MD, and Lakewood  NJ, while connecting with more doctors and hospitals throughout New York, New Jersey, Philadelphia and Maryland. In addition to the continuous efforts in research in better understanding IBD and hopefully a Road to prevention. We had a key role in passing the Crohn's & Colitis Fairness Act - NY State Restroom Access Act in Assembly and in Senate. 

At this opportunity, we would like to express our deep appreciation for your ongoing support of our mission. It is only with your continuous dedication that we are able to improve the quality of life for the people affected by Crohn's and Colitis and their families.


Please help us so we'll be able to help you better!

The JCCSG has been founded with more than 6 years ago to help those struggling with Crohn's Disease and Ulcerative Colitis. Over the past few years, we have helped people alleviate their struggle to survive the difficulties of these diseases. We have provided general information, assisted with medical referrals, launched educational symposiums and support group events.

In the last year, we have spent a lot of resources to improve and strengthen connections with doctors to be able to expedite appointments, to provide support for those struggling with the disease and their families, and to arrange support gatherings. We also have many great ideas in the pipeline for the future.

We never asked our beneficiaries for any fee, and intend to continue to do so for as long as we can. However, we need financing to be able to launch our new website and many new projects and keep up with the old ones.

Here we are with a plea to all of you: Please help us out so we'll be able to help you better! As of now, we can only depend on the people who know what Crohn’s/Colitis is… Any donation, no matter how small, will go a long way in making it all possible.

You can donate here: https://thechesedfund.com/cause/help-jccsg-to-help-others 

or call us with your credit card.


You can also send us a Chase QuickPay to: Info@JCCSG.org

Or you can send us a check, payable to JCCSG Inc., to:
JCCSG Inc.
146 Spencer St., Suite #5012
Brooklyn NY 11205


We are a 501(c)3 organization. All your donations are tax deductible. Feel free to email us for your official receipt.

​​
We appreciate your help and look forward to your generous contribution.

And we would really appreciate if you can forward this email to your friends and family, Or even post it on your social media groups… 

A Kesiva V'Chasima Tova!

!כתיבה וחתימה טובה! שנה טובה ומבורכת


All the best!
Yoely Drummer
Founder & Executive Director

In the name of our Board Members and all
​ ​
Your friends at עול"ם - JCCSG
עזרה וחיזוק לחולי מעיים
Jewish Crohn's & Colitis Support Group

Monday, July 17, 2017

Next event in Baltimore

On behalf of JCCSG – Baltimore Chapter, we are pleased to invite you to our next Symposium for education and support for sufferers of Crohn’s and Ulcerative Colitis.

Sunday, July 23rd, 2017, at 9:30 a.m.
The Towers Clubhouse,
3001 Fallstaff Rd.
Baltimore, MD 21209

Featuring:
Inflammatory Bowel Disease and Healing Dietary Solutions
By: Tamar Feldman, RDN CDE

For more information please email Baltimore@JCCSG.org or call our local office at 410-989-2005

Help us spread the word. Should you know someone who might benefit, please forward this, they might not be on our mailing list…

Ps. There will NOT be a Live Online Video hookup, nor Teleconference! Will let you know if there will be any recordings.


Tuesday, June 27, 2017

Baruch Dayan Ha’Emes!


We regret to inform you of the passing of Rabbi Ezariah Zisha Follman, Zt”l, Bobov’a Rosh Yeshivah, Father of our dear friend, Rabbi Eluzer Duvid Follman, JCCSG Board Member.

Rabbi Zisha Zt”l, was Marbitz Torah for over half a century, and was the dedicated Rebbi to thousands of Talmidim as Rosh Yeshivah of Yeshivas Eitz Chaim of Bobov, read more here

Rabbi Follman is sitting Shiva at 1857 50th St, Brooklyn, NY 11204, Until Friday, 6/30 Afternoon.

HaMakom Yenachem Et'chem B'toch Shar Avay'lay Tzion vee'Yerushalayim. (May the Omnipresent comfort you among the mourners of Zion and Jerusalem).

If you want, you can reply to us with your condolences words and we will forward it to him.


Rebbi Zisha Follman Zt"l visiting Grand Rebbi of Bobov.
Next to the Bobov'a Rebbi is, Rabbi Eluzer Duvid Follman, JCCSG Board Member

Tuesday, June 20, 2017

Mazel Tov! Bill S3295 - Crohn's & Colitis Fairness Act has PASSED!

Congratulations!

We are delighted to say that A1982/S3295, the “New York Crohn’s and Colitis Fairness Act” passed the New York State Senate on June 19; And now heads to Governor Cuomo, all we still need for it to become law is the Governor’s signature and a wait period of 120 days, we anxiously await the final good news we are hoping for.

Special kudos to all the people who sent emails and placed calls to their representatives and legislators! Every step you made brought it a step closer to this success!

Please stay tuned for updates and further alerts in case there is any action needed to ensure the Governor signs the bill into law.

Thanks again for all of your efforts to support passing the restroom access legislation in New York State once and for all!

And, Sorry for the delay on the exciting news…

Friday, June 16, 2017

Re: Bill S3295 - Crohn's & Colitis Fairness Act - NY State Restroom Access Act

The New York State legislature is close to passing Bill S3295, the Crohn's & Colitis Fairness Act. The bill has passed in the Assembly 104 Yea vs 4 Nay, and 16 Aye - 0 Nay (with 1 Aye with Reservations) in the Senate Health Committee, and is on its 3rd reading in the Senate which means it is expected to come to a vote in June.

It is up to Senate Majority Leader John Flanagan to move S3295, the Crohn's & Colitis Fairness Act to the active list and put it up for a vote before the 6/21 end of the session. He will be more likely to put S3295 up for a vote if he hears that it’s important to his constituents and other Senators.

Call your State Senator's Albany office (518 number) and urge them to call Senator Flanagan and urge him to put S3295 up for a vote. Please keep calling and continue to follow up until the bill is passed!

Click here to contact your New York State Senator today and tell them to pass S3295! Or you can reply to us with your address and we will send you your senators information to call.

2017 has to be the year that restroom access becomes a reality in New York State! We only have 6 days left to raise our voices, Senate session closes on Wednesday, June 21. Please act now!

Sunday, June 4, 2017

Advocacy Action Alert for tomorrow, June 5 | Crohn's & Colitis Fairness Act

We need your help! New York State is One Step Closer to Passing the Crohn’s and Colitis Fairness Act

Good news! New York State is one step closer to passing the Crohn’s and Colitis Fairness Act (Bill S3295), and we need YOU to take action today to ensure its passage by the New York State Senate. The bill would allow people with medical conditions that require urgent restroom use - such as Crohn’s disease and ulcerative colitis - to use an employee-only restroom when a public one is not available and it is safe for the business to do so.

The bill has passed the Senate Health Committee and now sits on the Senate Calendar awaiting action. We need YOUR help to get the bill on the “active list” for a reading and vote on the Senate floor.


In order to make a strong case for this bill, JCCSG and the Crohn’s & Colitis Foundation will be in Albany TOMORROW to personally advocate Senators.

What can you do now?

  1. Identify your New York State Senator here:  http://www.nysenate.gov/find-my-senator
  2. Contact your State Senator by phone and email (email template below) to ask for their support of this bill (S3295) and explain why it is personally important to you. Ask your Senator to push Senator John Flanagan, Temporary President and Majority Leader of the Senate, to put it on the active list and bring it to a vote this session.  The legislative session ends on June 21, so please do this as soon as possible.
  3. Ask your friends and family in NY State to do the same! It really is that easy. With enough of our voices being heard, we are confident we will get the Crohn’s and Colitis Fairness Act passed in New York this year, and you will have been a part of the process!
  4. Show your Senator that you support the billhttps://www.nysenate.gov/legislation/bills/2017/s3295/amendment/original#yes
  5. If you are able to visit your State Senator in person, the materials here are helpful to leave behind.

For more information, and to track the progress of the bill, click here.

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Email Template

Dear  ______________,

I am a voter/constituent in your district and I am asking for your support of Bill S3295, which enacts the "Crohn's and Colitis Fairness Act" providing restroom access. Please contact Senator Flanagan to have him put this bill (S3295) on the active list and vote for it when it comes before you.

S3295 would allow people with medical conditions that require urgent restroom use- such as Crohn’s disease and ulcerative colitis- to use an employee's only restroom when a public one is not available and it is safe for the business to do so. In NY State there are more than 100,000 people with these debilitating diseases. I am sure you can imagine how it must feel to be denied access to a bathroom when you so desperately need one because of a severe and chronic medical condition. S3295 is important to me because...
 (I have IBD or am related to or friends with - whatever personal connection you wish to share).

Thank you,
Your name


*


You can also email your Senator using the Crohn’s & Colitis Foundation action alert system.

Tuesday, May 16, 2017

Reminder: TONIGHT in Lakewood

Dear Member,

This is just a friendly reminder to TONIGHT'S Symposium taking place At the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.

Program to start 7:45 pm Sharp!

Patients, Husbands, wives, parents, caregivers and other Non-affected family members are invited and very welcome to attend. Familial support and awareness are important to those afflicted with this disease.

Your presence will greatly enhance the event. Come and be inspired. And please try to be on time so we should be able to start and end on time.

Help us spread the word. Should you know someone who might benefit, please forward this email, they might not be on our mailing list…


Wednesday, May 10, 2017

Crohn's & Colitis Event, May 16, in Lakewood NJ

Dear Member,

The Overwhelming demand and the positive feedback has inspired us to forge ahead with subsequent events, We -in conjunction with the Lev Rochel Bikur Cholim of Lakewood- are pleased to invite you to a very informative and insightful Education Symposium & Support Event for Patients, Husbands, wives, parents and caregivers of people suffering from Crohn's Disease and Ulcerative Colitis.

The event will take place next week Tuesday, פרשת בהר-בחוקותי, May 16, 2017, 7:30pm promptly, At the headquarters of the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.

Featuring:
  • Dr. Razvan Arsenescu, MD, PhD
    Chief Atlantic Digestive Health Institute, Director Atlantic Inflammatory Bowel Disease Center

  • Dr. Joel R. Rosh, MD, FAAP, FACG, AGAF,
    Director, Pediatric Gastroenterology, Vice Chairman, Clinical Development and Research Affairs, Goryeb Children's Hospital/Atlantic Health
    Professor of Pediatrics, Icahn School of Medicine at
    Mount Sinai

  • Introductory words by:
    Dr. Daniel Lapidus
    Pediatric Affiliates

For more information, or any help feel free to contact us, at 718-63-JCCSG
(718-635-2274) or by email: Info@JCCSG.org.
Or the Lev Rochel Bikur Cholim of Lakewood at
732-905-3020, Ext. 116

Help us spread the word. Should you know someone who might benefit, please forward this, they might not be on our mailing list…

Tuesday, May 2, 2017

Re: Next Event in Baltimore

Dear member,

Enlightening update regarding the upcoming “JCCSG Support Event", which will take place on Monday, פרשת אמור, May 8, 2017. At the home of Mr. & Mrs. Chanoch & Ilana Hoenlein, 6227 Berkeley Ave., Baltimore, MD 21209. Program to start 8:15 pm Sharp!

The Event is for patients, wives, husbands, parents and caregivers of people affected by Crohn's Disease and Ulcerative Colitis.

Divrei Chizuk by Rabbi Shmuel Silber, Rav of Suburban Orthodox, Congregation Toras Chaim in Baltimore, Founder and Dean of the Institute for Jewish Continuity.

You can share with us your comments and suggestions by calling Mrs. Shana Sobol, JCCSG Baltimore Chapter Coordinator, at 410-598-2327, or by sending an email to Baltimore@JCCSG.org. We would be delighted to hear from you.

Help us spread the word. Should you know someone who might benefit, please send them this information, they might not be on our mailing list…

Sunday, April 30, 2017

Next Event in Baltimore

In response to the overwhelming demand from the people of Baltimore, we have been inspired to forge ahead. We are so proud to now announce our next “Education & Support Event”!

This event will be held in Baltimore, Maryland, on Monday, May 8th, 2017

Stay Tuned for our future updates and feel free to contact us with all your concerns and comments by phone or by sending an email to Baltimore@JCCSG.org. We would be delighted to hear from you.

Help us spread the word. Should you know someone who might benefit, please send them this information, they might not be on our mailing list…

Tuesday, April 25, 2017

A loss to our IBD community: ​Dr. Adrian Greenstein

It is with great sadness that we announce the passing of our beloved friend, Dr. Adrian Greenstein, MD, FACS, FRCS.

The pain is still raw, and the loss so profound, Dr. Greenstein was a world-renowned IBD surgeon who was a Professor of Surgery at Icahn School of Medicine at Mount Sinai since 1968, Through most of his long career, Dr. Greenstein maintained one of the busiest inflammatory bowel disease (IBD) surgical practices in New York City.

Dr. Greenstein contributed more than 150 publications to the literature on surgical approaches, the majority of which have been on inflammatory bowel disease. More importantly, we will always remember Dr. Greenstein’s incredible surgical skill in the most complex cases of IBD, his patience and compassion as a clinician, and his ever-gentle manner. he was a strong advocate for our organization JCCSG, being a sounding board of advice, guidance, and affection. His patients and colleagues adored him, as did the generations of residents and medical students that were fortunate enough to learn from him.

As his Son, our dear friend, Dr. Alexander J. Greenstein, Associate Professor of Surgery, Mount Sinai Hospital, once said:

“My father pretty much made it possible for everything. I owe him a lot. It’s been terrific as a kid, he was a wonderful father and now as a partner, a wonderful mentor. I’m sure I could have made it, but it has certainly been amazing to work with him, help him and have him lead the way. We’ve complimented each other really well, and he’s brought out the best in me.”
You can read about their teamwork, in the NY Daily News, in 2012…
 


We send our heartfelt condolences to Dr. Greenstein’s family. Especially to his son, our dear friend, Dr. Alexander, May the family be comforted among the mourners of Zion and Jerusalem.

Shiva will be observed till Thursday, 4/27, from 5:00pm till 7:00pm, at 73 Windsor Road, Tenafly, NJ, 07670

We and his many patients over the last 5 decades will miss him greatly. He will always be remembered!


Yoely Drummer
Founder & Executive Director 

And Your friends at עול"ם - JCCSG Inc.

Wednesday, April 5, 2017

Pesach Notifications

Dear Friends,

וואס טרינק איך פאר די ד' כוסות? מעג איך עסן מצה ומרור?

הערט א גאר אינפארמעטיווע און וויכטיגע אינטערוויו מיט אינפארמאציע און אנווייזונגן וואס איז ספעציעל נוגע פאר Crohn's און Colitis פאציענטן אום פסח

אויף קול מבשר, 212-444-1100 און דריקט 3-1-1 דערנאך 1558#
וזאת למודעה: אלעס וואס עס ווערט אויסגעשמועסט אויפן אינטערוויו, איז אויסגעארבייט געווארן אדורך גדולי מורי הוראה

 פאר סיי וואספארא פראבלעם איר האט אום יו"ט און איבערן גאנץ יאר קענט איר אונז רופן אויף 718-635-2274


As the Yom Tov Pesach is approaching, we would like to Invite you to listen to an important and informative interview in
​​
 Yiddish
, discussing the Halachasregarding Arba Kosos, Shiurim of Matzah and Maror, and more.

You can listen to it on the Kol Mevaser Hotline, at 212-444-1100, press 3-1-1, and then 1558#

Pesach is a favorite holiday, we all gather with our families and discuss the miracle of our redemption and remember the freedom granted to us by Hashem. In that remembrance, we have the Seder, Matzah, and Arba Kosos. To most, these appear to be fun parts of the holiday to approach joyously. But to a Crohn’s or Colitis patient, it can be slightly nerve inducing as the least digestive friendly holiday approaches.

First, it is important to remember that many medications interact with alcohol. Be wary of this and ask your physician before consuming your Arba Kosos. remember, if you are taking Antibiotics (As Flagyl – Metronidazol and same goes to a lot of other) you are not allowed to drink any alcohol!
All other IBD patients should please double check with your doctor if the effectiveness of your medication will not be decreased or render them useless while mixing them with alcohol.

Simply skipping medication is not the answer to the very real problem! You should exercise extreme caution and consult with your doctor and Rabbi/Rav before deciding not to take a medication on Pesach. As important as one treats the laws of Kashrus, one is also obligated to treat the Mitzva of "V'Nishmartem M'Od L'Nafshotaichem" - "Take care of your health". Therefore, under no circumstances should an individual forego taking a prescribed medication of Pesach (and during the year...) without first consulting one's physician and Rav for a careful analysis of the situation.

Second, Matzah is notoriously harsh on the stomach, and in order to stay healthy and safe you have to take precautions. Speak with your physician and your Rav about how you should approach eating matzah this coming Pesach, all information on the above-mentioned Yiddish Interview has been discussed and guided by Rabbanim.

Please call your doctor if you have any issues, if you have a problem reaching your doctor, feel free to contact us anytime, we will try our best to get you through. Do not hesitate to call us anytime.

Please forward this email to all patients and their families who may benefit.

Big Thanks to Abigail Winokur for the help!

We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!

Thursday, March 9, 2017

PURIM ALERT!!!

PURIM ALERT!!!

We're sending this email early enough... it's a friendly reminder about the danger of mixing certain medications with alcohol. In some cases, alcohol interactions may decrease the effectiveness of medications or render them useless. In other cases, alcohol interactions may make drugs harmful or even toxic to your body, even in small amounts!

We witnessed many patients taking Flagyl - Metronidazel and they drank alcohol having very unpleasant and some even life-threatening side effects, Therefore if you're taking Flagyl - Metronidazel, do NOT drink! (We pointed out one Antibiotic, but there are much more other medications with the same danger).

In any case, each and every Crohn's and Colitis patient should double check with their doctor if drinking alcohol while taking your medication is safe, and if you're allowed to drink even a drop!


Please be responsible! Do it for yourself and for your family.



A Freilichen Purim! And Tumid B'Simcha!

Monday, January 23, 2017

Audio of the CrownHeights Event

Dear member,

Sorry for the delay... Attached is a link to download the recording of the event in Crownheights. Or you can pick up a CD at all ‘קרן שמואל ישעי - Keren Shmiel Shaya kiosk and Shul locations. For the low cost of $5.00.



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  1. Event Moderator: Comedian Mendy Pellin
  2. Optimizing current therapies for IBD: Dr. David Hudesman, Director of IBD, Tisch NYU Hospital.
  3. Mendy Pellin
  4. Upcoming treatments in the Pipeline: Dr. Simon Lichtiger, Director of IBD, Columbia Hospital.
  5. Mendy Pellin
  6. Diets and Natural supplements in IBD: Dr. Garrett Lawlor, Associate Director of IBD, Columbia Hospital
  7. Dr. Eli Rosen, Crown-Heights physician
  8. Personal Story: Mendy Pellin
  9. Surgical treatment of IBD: when its needed & what are the options: Dr. Feza Remzi, Director of IBD, NYU Langone Medical Center.
  10. Pediatric IBD: Developing and Growth: Dr. Nancy Pittman, Pediatric, Gastroenterology, Mount Sinai Hospital
  11. Question and Answer session and a five doctors panel

Tuesday, January 3, 2017

Ladies Support Group Gathering

We are doing it again!

An uplifting and inspiring experience; Join us at our “Ladies Support Group” gathering, an afternoon of Awareness, Unity and Joy.

"Reclaim Your Womanhood" workshop given by the inimitable Rivka Malka Perlman.

Experience life again; this time with you in the driver's seat!

Save the date!
Sunday, January 22, 2017, 12:0pm.
Machon High School (2nd floor)
1683 42nd St., Brooklyn, N.Y. 11204

Program begins promptly - Light/SCD diet refreshments will be served.

RSVP required

Email: Support@jccsg.org
Text: 917-676-6358

The gathering is specifically for women with Crohn’s Disease or Ulcerative Colitis.


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Reminder: Please help us out so we'll be able to help you better. Any donation, no matter how small, will go a long way in making it all possible.

Please donate here: https://thechesedfund.com/cause/help-jccsg-to-help-others

You can also send us a Chase QuickPay to: Info@JCCSG.org
Or call/email us with your Credit Card info

We are a 501(c)3 organization. All your donations are tax deductible.