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Monday, March 28, 2022

LAST CHANCE TO WIN!

 LAST CHANCE TO WIN

$100,000.00!!!
ONLY 2 HOURS LEFT!



Any contribution, no matter how insignificant, will go a long way toward making this all possible.
 
You can donate now and buy a Raffle at

DONATE $100 FOR A CHANCE TO WIN $100,000.
+ 10 ADDITIONAL PRIZES!

Please note: because it is a drawing between several organizations, the drawing will take place regardless of whether we reach our goal or not. However, 
YOU gotta be in it, to win it...



Tuesday, March 15, 2022

Purim Alert

PURIM ALERT!!!

As a friendly reminder, it is extremely dangerous to combine certain medications with alcohol. In some cases, interactions with alcohol can reduce the effectiveness of medications or even render them ineffective altogether. In other cases, drug interactions with alcohol can make drugs harmful or even toxic to your body, even when taken in small doses.

Several patients who were taking Flagyl - Metronidazel and drank alcohol experienced very unpleasant and in some cases life threatening side effects. If you are taking Flagyl - Metronidazel, we strongly advise you to refrain from drinking alcohol. (We specifically mentioned one antibiotic, but there are numerous other medications that pose the same threat.)

Each and every Crohn's and Colitis patient should consult with their doctor to determine whether or not drinking alcohol while taking their medication is safe, and if they are even permitted to drink a drop!

Please be responsible! Do it for yourself and for your family.

A Freilichen Purim! And Tumid B'Simcha!

Monday, March 14, 2022

Help us help you! And WIN! YOU gotta be in it, to win it...

Dear Member,

We are two weeks away from the drawing, and we would like to give you the opportunity to repay us for what we have done to you while also giving you the chance to win
$100,000.00!!!

We are now faced with the necessity of expanding our services in order to establish a more comprehensive network of support for Crohn's and Colitis patients and their families. In addition to assisting with the provision of post-surgical respite services, we are currently working on "another" getaway retreat destination.

With hundreds of people relying on us for assistance, we require your assistance in order to scale our efforts exponentially.

Here we are, making a plea to all of you: Please assist us in ensuring that all of our members' requests are answered and fulfilled!

No matter how small, any contribution will go a long way toward making this all possible.

You can donate now and buy a Raffle at

DONATE $100 FOR A CHANCE TO WIN $100,000.
+ 10 ADDITIONAL PRIZES!

Deadline to Enter 3/28/2022

Please note: because it is a drawing between several organizations, the drawing will take place regardless of whether we reach our goal or not. However,
YOU gotta be in it, to win it...

******************************************

P.S. We would greatly appreciate it if you could forward this email to your friends and family members. Allow them to contribute as well as to be eligible to win!
If you are interested in assisting us with posting this campaign on your WhatsApp status or any other social media platform, please get in touch with us via email or WhatsApp at 917-676-6022, and we will send you the necessary information and instructions. Thanks in advance!



Sunday, January 2, 2022

Help us help you! And WIN!



Dear Member,
For the past 10+ years, we at the JCCSG were here for you 24 hours a day, 7 days a week, 365 days a year, doing everything possible to improve the quality of life of children and adults affected by Crohn's Disease and Ulcerative Colitis. We have helped people alleviate their struggle to survive the difficulties of these diseases. We have provided general information, assisted with medical referrals, expedited appointments, launched educational symposiums, and support group events.

We are now faced with the need to expand our services with the goal of creating a greater network of support for Crohn's and Colitis sufferers and their loved ones.​ ​In addition to the help of providing post-surgical respite services, we are expanding to provide services such as "another" getaway retreats, life coaching, coping skills, emotional support, house cleaning help, suppers, and babysitting for those needing to travel for endless appointments and on-going hospital stays.

With hundreds relying on us for help, we need your help to expand our efforts exponentially.

Here we are with a plea to all of you: Please help us out so all the requests of our members should be answered and fulfilled!

Any donation, no matter how small, will go a long way in making it all possible.
You can donate now and buy a Raffle at

DONATE $100 FOR A CHANCE TO WIN $100,000.
+ 10 ADDITIONAL PRIZES!

+ EARLY BIRD SPECIALS:
Jewelry Certificate $1,500 Value
Deadline to Enter 1/25/2022

******************************************

Ps. We will aprreciate if you can forward this email to your friends and family! Let them doante as well and have a chance to win!.

If you like to help us with posting this campaign on your WhatsApp status, or any other social media platform, please reach out us via email, or WhatsApp 917-676-6022 and we will send you the info.

THANKS IN ADVANCE!



Sunday, March 15, 2020

IBD & COVID-19

We received emails from doctors to share with our members:

Here are the guidelines to share with everyone 
  • Stay on your IBD medications: If you are feeling well, we are recommending to all patients with inflammatory bowel disease (IBD) to continue your medications, as the risk of a flare of your disease likely outweighs the risk of contracting COVID-19, Inflammation due to IBD can lead to complications and damage to your intestinal tract. Also, active inflammation associated with your disease is a significant risk factor for getting any infection. This includes immunosuppression such as immunomodulators (azathioprine, 6-mercaptopurine, methotrexate), JAK inhibitors (tofacitinib) and biologic drugs.
  • If you are taking a mesalamine: (Asacol, Apriso, Canasa, Delzicol, Lialda, Pentasa, Rowasa) or other aminosalicylates, these are all safe and are not immune suppressant medications at all.
  • Immunomodulators: Patients with IBD who are on immunosuppressive agents, like thiopurines (azathioprine, Imuran, 6-mercaptopurine, [Knows as 6MP...] cyclosporine, methotrexate), and JAK inhibitors (such as tofacitinib, (Xeljanz), Should continue their meds!.
  • Biologics/Biosimilars: If you are on Biologics including certolizumab pegol (Cimzia), adalimumab (Humira), infliximab (Remicade), golimumab (Simponi), infliximab-abda (Renflexis), infliximab-dyyb (Inflectra), infliximab-qbtx (Xifi), ustekinumab (Stelara), and vedolizumab (Entyvio), Do NOT stop taking these medications.
  • We feel it is extra important to do social distancing (avoid crowds, limit public transit, no shaking hands, etc.) and avoid any unnecessary travel. (As a doctor added: Although not possible for all, we would recommend seeing if it is feasible to work from home.)
  • If you are taking steroids: One consideration for medications is that if you are on oral steroids (prednisone/prednisolone, Budesonide Entocort EC, UCERIS), we would recommend discussing with your primary gastroenterologist if possible to taper (lower your dose) or discontinue these medications.
  • The number 1 best way to prevent COVID-19 remains good hand hygiene. This includes washing hands multiple times a day (especially before eating and after going to the bathroom) with soap and water (for at least 20 seconds) or hand sanitizer with at least 60% alcohol. 
  • This is a rapidly evolving situation so we recommend regularly checking the CDC website for updates.
  • If you feel sick, please contact your gastroenterologist, so they can guide decisions on stopping medications and when to seek in-person care.

STAY SAFE!!!

Friday, October 4, 2019

Yom Kippur info. A Git Gebencht Yur! Have an Easy fast!

This is sponsored by
Thrivewell Infusion
A new state-of-the art infusion center, with comfortable and convenient private suites, where everything is running in the most timely manner. 

Thrivewell Infusion is located at the Brooklyn Square in Boro Park, 1428 36th St. Suite 107, Brooklyn, NY 11218.

Call 212-803-3339 to schedule your next infusion, and they will take care of the rest! 

If you require any further information, feel free to contact us, If we can be of assistance, please do not hesitate to contact us.
***

We at עול"ם - The Jewish Crohn's & Colitis Support Group (JCCSG) would like to wish you and your family again, a good and sweet, and prosperous year. A year filled with Good health, well-being, happiness, success, Nachas, Parnasah and all you need. May we all be inscribed and sealed in the Book of Life. 

As a reminder, please discuss with your Rabbe/Rav/Dayan AND Doctor regarding your fasting, taking your medications, and/or about taking IV (Intravenous) fluids.


***

After we were asked by a lot of our members, we're sending a list of IV Center's provided by our heroic Chevra Hatzolah

The providers where you should call to arrange are asking you to call early enough so they should have the Fluids and it should not take that long for them! Remember, they are volunteers! 

Williamsburg:

On Yom Kippur (IV Center):


For more info please call Chevra Hatzalah’s special line: 718-534-5050 Ext. 0 

*

Boro Park:

On Yom Kippur (IV Center):

  • Bobov Shul, 1533 48th St. - from 8:00am to 7:00pm
  • Belz Shul, 1321 43rd St. - from 8:00am to 7:00pm
  • Statcare, 1270 51th St. - from 8:00am to 7:00pm
  • Brizdovitz Shul, 1721 58th St. - from 8:00am to 7:00pm 

For house calls (Only if necessary) or for more info please call Yachad D’Bobov Bikur Cholim: 718-851-2500 

*

New Square:


*

Kiryas Yoel, Monroe:


*

Lakewood:

  • Please call -If possible text, with prescription details- the Lev Rochel Bikur Cholim of Lakewood, 732-905-3020 to arrange it. 

*

Montreal:

  • Please call Refuah V'Chesed, 514-357-2167 Ext. #108. 

*

REMEMBER: The same Torah which commands us to fast on Yom Kippur tells us that "V’Nishmartem M'od L’Nafshotaichem" - "Take care of your health/guarding our health" is far more important. 

Again, you need a prescription in order to get the IV, no exceptions! So please make sure to have it!

Have an easy fast!!! גמר חתימה טובה

Wednesday, July 10, 2019

Do you shop on AMAZON?

As Amazon Prime day approaches, (July 15& 16), we would like to ask you to add us as your preferred charity, As AmazonSmile donates to JCCSG Inc when you shop at smile.amazon.com.

You can make a difference while you shop Amazon Prime Day deals on July 15 & 16 – and actually all the time.... by simply shopping at smile.amazon.com/ch/45-4927458 and AmazonSmile donates to JCCSG.

You will still receive the same great results, selection of Amazon products, same low price, same Prime, and the same service, like when using Amazon.com directly, Only your web shopping portal will change, and you get to support our mission at no cost to you.

REMEMBER, Please use smile.amazon.com/ch/45-4927458 to shop!

Every penny counts!!!

Thanks in advance!

Wednesday, April 17, 2019

Pesach 2019 Notification

וואס טרינק איך פאר די ארבע כוסות? מעג איך עסן מצה ומרור?י

הערט א נייע אינפארמעטיווע און וויכטיגע אינטערוויו מיט אינפארמאציע און אנווייזונגען וואס איז ספעציעל נוגע פאר קראונס און קאלייטיס פאציענטן אום פסח, ווי מ'שמועסט אויס די שיעורי מצה, מרור, און ד' כוסות
אויפן קול מבשר האטליין, 212-444-1100
דאן דריקט 1-1-4

אויב הערט איר עס נאכנישט (ביי די קנעפל ווערט כסדר צוגעלייגט פרישע אינטערוויו'ס..) דאן דריקט די # קנעפל, ביז איר קומט אן צו די אינטערוויו. עס הייבט זיך אן "דעי אינטערוויו איז געאייגענט פאר אידן מיט קראונס...",י

די שיעור איז איבערגעגעבן געווארן דורך ידידינו היקר, וידיד כל בית ישראל
הרב אלעזר דוד פאללמאן שליט"א
ממייסדי ומראשי חברי וועד הנהלת ארגונינו עול"ם 

פאר אן אלטע אינטערוויו דריקט 3-1 פון די מעין מעניו און דערנאך 1558#
וזאת למודעה: אלעס וואס עס ווערט אויסגעשמועסט אויף די אינטערוויו'ס, איז אויסגעארבייט געווארן אדורך גדולי מורי הוראה, בעלי נסיון... וד"ל​

פאר סיי וואספארא פראבלעם איר האט אום יו"ט און איבערן גאנץ יאר קענט איר אונז רופן אויף

חג כשר ושמח!!!י

As the Yom Tov Pesach is approaching, we would like to Invite you to listen to a NEW important and informative interview in​​ Yiddish, discussing the Halachas regarding Arba Kosos, Shiurim of Matzah and Maror, and more.

You can listen to it on the Kol Mevaser Hotline, at 212-444-1100, press 1-1-4.
Please note: that section is being updated alot, so if you don't hear the interview with Rabbi Eluzer Duvid Follman, JCCSG Board Member, press # as many times needed until you hear the interview...

For a previous Shiur/Interview, press 3-1 on the main menu, and then 1558#

For any issue or emergency feel free to call us anytime, even during Shabbos/Yom-Tov, 718-635-2274.

Please forward this email to all patients and their families who may benefit.

​​We would like to wish you a Chag Kosher V'Samayach! A happy and healthy Yom Tov!

***

Announcing the Grand Opening in Baltimore of 
The SCD PANTRY!

We are a Gemach stocked with products in compliance with the Specific Carbohydrate Diet

For more information or to place an order please contact Batsheva Frank or Chavi Frank by email: thescdpantry@gmail.com or call/text: 347-306-2051

We are finalizing the details about opening one in Williamsburg. If you want to get involved and help us, please contact us! (Want to help at another location? Let us know!)

Wednesday, March 20, 2019

Purim Alert

PURIM ALERT!!!


A friendly reminder about the danger of mixing certain medications with alcohol. In some cases, alcohol interactions may decrease the effectiveness of medications or render them useless. In other cases, alcohol interactions may make drugs harmful or even toxic to your body, even in small amounts!

We witnessed many patients taking Flagyl - Metronidazel and they drank alcohol having very unpleasant and some even life-threatening side effects, Therefore if you're taking Flagyl - Metronidazel, do NOT drink! (We pointed out one Antibiotic, but there are many more other medications with the same danger).

In any case, each and every Crohn's and Colitis patient should double check with their doctor if drinking alcohol while taking your medication is safe, and if you're allowed to drink even a drop!

Please be responsible! Do it for yourself and for your family.

A Freilichen Purim! And Tumid B'Simcha!

Thursday, December 13, 2018

Reminder: TONIGHT! Symposium in Five Towns

Reminding you about TONIGHT's "Educational and Support Event" in the Five Towns

Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

Ps. There will NOT be a Live Online Video hookup, nor Teleconference! Will let you know if there will be any recordings.

We hope to see you all there!

Wednesday, December 5, 2018

Five Towns, here we come!

Dear Member,

The Overwhelming demand and the positive feedback have inspired us to forge ahead with subsequent events, we are pleased to invite you to an informative and insightful Educational Symposium & Support Event for Patients, Husbands, wives, parents, and caregivers of people suffering from Crohn's Disease and Ulcerative Colitis.

The event will take place Thursday, December 13, 2018, 7:30pm promptly, At The White Shul, 728 Empire Avenue, Far Rockaway, NY 11691. Parking available in adjacent parking lot.

Featuring:
Current Therapies in IBD
Dr. Arun Swaminath, M.D.
Director, Inflammatory Bowel Disease Program, Division of Gastroenterology Hepatology and Nutrition, Lenox Hill Hospital, Northwell Health
*
Pediatric IBD, Growing and developing:
Dr. Tuvia A. Marciano, D.O.
Chief of Pediatric Endoscopy, Director of Pediatric Inflammatory Bowel Disease, Vice Chairman, Institutional Review Board, Division of Pediatric Gastroenterology and Hepatology, NYU Winthrop University Hospital, Assistant Professor of Pediatrics, Stony Brook School of Medicine
*
Hidden heroism: 
How life changes when you or your loved one has IBD
Dr. Norman Blumenthal, PHD
Licensed Psychologist, Zachter Family Chair in Trauma and Crisis Counseling, Director, OHEL Miriam Center for Trauma, Bereavement and Crisis Response, OHEL Children's Home and Family Services
*
Followed by a Q&A Session.
Feel free to submit your questions by emailing us in advance, as we will only be able to accept minimal questions at the event.

***
For more information or any help feel free to contact us,
at 718-63-JCCSG (718-635-2274) or by email: Info@JCCSG.org

***
Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

We hope to see you all there!

Wednesday, November 14, 2018

Reminder: TONIGHT! Evening of Comedy in Baltimore!

Reminding you about TONIGHT's "Baltimore Evening of Comedy" Starring famous Comedian and Actor, Mendy Pellin

Wednesday, November 14, 2018, at 8:00 pm, at the home of Judy (Bregin) Gross, 3415 Bancroft Rd, Baltimore, MD 21215

Feel free to contact us with any questions or suggestions at Baltimore@JCCSG.org, or call us at 410-989-2005. 

Please help us help you with letting your family and friends know about this Event. You never know that someone else within your circle might benefit from it… Pass the invitation or send us their email address to be added to our mailing list.

We hope to see you all there!